What is an USH Ambassador?

An USH Ambassador is a volunteer who is knowledgeable about Usher syndrome and the community and is willing to be a point of contact in their state or country. Ambassadors educate their community about Usher syndrome and the USH Trust*, provide information and resources, connect with others in their state/country. and may represent the Coalition at community activities such as workshops and conferences.

Ambassadors play a key role in growing our community. Within their areas, states, or countries, they are reaching out to agencies and organizations that work with or serve children and adults with Usher, and their families. They are also reaching out to you – individuals living with Usher - and building the Usher community worldwide, one person at a time. There is strength and hope in numbers.

If you'd like to learn more about becoming an USH Ambassador, please fill out a volunteer application .

Meet some of our USH Ambassadors at the 2026 USH Connections Conference!