USH Ambassador for California

Katrina Stanley

Image description: Young white woman with short black hair and turquoise highlights, speaks into camera. 

Transcript: Hi, I'm Katrina one of the ambassadors for the Usher Syndrome Coalition.  I currently live in California and I help with finding resources and connections there. I personally have Usher type 2a and was diagnosed about 10 years ago. I finished my master's recently and am currently working/looking for employment while working with Usher Syndrome Coalition. And I wanted to say, "Hang in there, and everything will work out," and that you have found the right place to be in the Usher Syndrome Coalition. It's a huge family and everybody here helps everybody. So thank you and hope to help and hear from you soon! 

Contact Katrina at: ambassador.ca@usher-syndrome.org

Resources for California

  • This free, confidential, and simple registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

  • CDBS serves individuals from birth through age 21 who have combined hearing and vision loss, with or without additional disabilities.

  • Program and service referral

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

  • A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.