USH Ambassadors for Greece

The ambassador for Greece is Lemonia.

Greece uses a team approach in order to provide local support to the USH Ambassador. Three professionals - Georgia Pappa, Katerina Bezerianou, and Froso Zafiri - have been trained and work alongside Lemonia and the DeafBlind and Usher communities in Greece. 

You may contact Lemonia at: ambassador.greece@usher-syndrome.org

You may contact  Georgia, Katerina, and Froso at ambassador.greece2@usher-syndrome.org

Resources for Greece

  • The USH Trust is the largest international contact database of individuals with Usher syndrome. Created and maintained by the Usher Syndrome Coalition, it is our most powerful tool to connect and inform individuals living with Usher worldwide. The USH Trust allows us to get to know and serve the community better, and to do what we do best: identify, build, support, and connect the community, both within the Usher community and with the research community. We do this via email, telephone, videophone, social media, webinars, local social events, our USH Connections Conference, and the many resources on our website. Come, join us!

  • Individuals with Usher syndrome who are passionate about research have a new data collection platform to join. The Usher Syndrome Data Collection Platform, or USH DCP, is hosted by RARE-X, a nonprofit dedicated to accelerating research. By entering your health information into this secure platform, you will become part of a global database of de-identified information available to researchers worldwide. That means that only you can see your data. Only you can change your data. Your personal information (name, date of birth, address, etc.) will not be shared without your permission. As the DCP grows, more researchers will become aware of Usher syndrome. This can lead to the development of clinical trials, new treatments, and new therapies. YOU hold the key to unlocking future research discoveries.

  • This is the first video about deafblindness and Usher syndrome in Greece. Learn about the evolution of services and supports, and all of the great Greek people who are part of the DeafBlind community!

  • Ο Πανελλήνιος Σύνδεσμος Τυφλών ιδρύθηκε το 1932 και είναι ο πρώτος φορέας αυτό-οργάνωσης των τυφλών στην Ελλάδα αλλά και όλων των ατόμων με αναπηρίες. Κύριος στόχος του είναι, η υπεράσπιση των δικαιωμάτων και η ουσιαστική βελτίωση της ποιότητας ζωής όλων των ατόμων με προβλήματα όρασης, στην Ελλάδα.

    The Panhellenic Association of the Blind was founded in 1932 and is the first body of self-organization of the blind in Greece and all people with disabilities. Its main goal is to defend the rights and substantially improve the quality of life of all visually impaired people in Greece.