USH Ambassador for Michigan

Sarah Turner

Sarah Turner lives in Michigan with her daughters. Sarah was diagnosed with USH2A at the age of 38 and is still adjusting to the diagnosis, learning about Usher syndrome, and what it means for her. She works full-time in Marketing, and when she's not working she loves running, photography, baking, and reading. In addition to her role as an ambassador, Sarah works with the Coalition as a volunteer on the Marketing team. 

Contact Sarah at:

Resources for Michigan

  • This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

  • DB Central provides technical assistance, information, and training to address the early intervention, special education, related services, and transitional services needs of children with DeafBlindness and enhance state capacity to improve services and outcomes for children and their families.

  • Program and services for youth and adults with combined vision and hearing loss.

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.