Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this disorder worldwide. There is currently no cure for Usher syndrome.
The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Members of the USH community can participate in the Walk4Hearing in support of the Usher Syndrome Coalition. Here are the dates and locations for 2017 walks.
The latest news from the Usher Syndrome Coalition: Register for the 9th Annual USH Connections Conference, watch new USH Talks and more!
An overview of five technological products that can help the visually impaired.
The prestigious Institute of Ocular Microsurgery in Barcelona implanted the first patient in Spain with IRIS® II, a bionic vision system equipped with a bio-inspired camera and a 150-electrode epi-retinal implant that is designed to be explantable.
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