Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this disorder worldwide. There is currently no cure for Usher syndrome. 

You have the power to change that.

Usher Syndrome Coalition: Connecting the Global Usher Community

Our mission is to raise awareness and accelerate research while providing information and support to individuals and families affected by Usher syndrome. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.  

Usher Kids UK brings together families of children with Usher syndrome in the United Kingdom. Learn more about our USH Partner.

Hear See Hope has been funding Usher syndrome research for 15 years. Learn more about our USH Partner.

Usher 1F Collaborative's mission is to fund medical research to find a cure for the vision loss of Usher Syndrome type 1F. Learn more about our USH Partner.

Ava's Voice empowers youth with Usher syndrome. Learn more about our USH Partner.

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