Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this disorder worldwide. There is currently no cure for Usher syndrome.
The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
We invite you to join the Usher Syndrome Coalition in celebration of our 4th global Usher Syndrome Awareness Day, Saturday, September 15, 2018.
Urge your House Representative to support the "Eye-Bonds" bill to provide $1 billion of new funding designated for treatments and cures of all causes of blindness and severe vision loss, including Usher syndrome.
Hans Jørgen Wiberg describes Be My Eyes, the app made up of a global community that connects people who are blind or have low vision with sighted volunteers from around the world through a live video call.
The Kimberling Usher Research Laboratory in the Institute for Vision Research is pleased to announce an increase in their campaign goal to $10 million. This increase is possible because additional major donors have joined the "challenge side" of the matching effort so that they can now match every gift for Usher Syndrome Research, dollar for dollar, until $10 million is raised.
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