District of Columbia

The USH Trust is the largest international contact database of individuals with Usher syndrome. Created and maintained by the Usher Syndrome Coalition, it is our most powerful tool to connect and inform individuals living with Usher worldwide. The USH Trust allows us to get to know and serve the community better, and to do what we do best: identify, build, support, and connect the community, both within the Usher community and with the research community. We do this via email, telephone, videophone, social media, webinars, local social events, our USH Connections Conference, and the many resources on our website. Come, join us!

Individuals with Usher syndrome who are passionate about research have a new data collection platform to join. The Usher Syndrome Data Collection Platform, or USH DCP, is hosted by RARE-X, a nonprofit dedicated to accelerating research. By entering your health information into this secure platform, you will become part of a global database of de-identified information available to researchers worldwide. That means that only you can see your data. Only you can change your data. Your personal information (name, date of birth, address, etc.) will not be shared without your permission. As the DCP grows, more researchers will become aware of Usher syndrome. This can lead to the development of clinical trials, new treatments, and new therapies. YOU hold the key to unlocking future research discoveries.

Connections Beyond Sight and Sound is a partnership between the Maryland State Department of Education and the University of Maryland, College Park. This project supports Maryland and DC children and young adults with deafblindness in their homes, schools, and communities by providing consultation, training, special programs, resources, and technical assistance to children and their families and providers.

The District of Columbia Telecommunications Relay Service (DC Relay) is a program of the Public Service Commission of the District of Columbia. Hamilton Relay is the DC Relay provider for the District.

Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

Program and services for youth and adults with combined vision and hearing loss.

A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.