North Carolina

This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

This project provides information, support, resources, and technical assistance to programs serving children who are deaf-blind, and their families in North Carolina.

Program and services for youth and adults with combined vision and hearing loss.

iCanConnect provides people with combined and significant vision and hearing loss who qualify with free telecommunication equipment and training. Each state has their own program. Funding for iCanConnect is provided through the National Deaf-Blind Equipment Distribution Program, NDBEDP.

A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.