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Mark Dunning, father of Bella, writes about one of the "neglected aspects of Usher syndrome" - balance issues associated with Usher syndrome type 1.
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Author Pam Aasen describes the incredibly successful journey of her sons, Ethan & Gavin, as they navigated the balance issues associated with Usher syndrome type 1.
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Presentation delivered by James Phillips, Ph.D., at the 2016 Usher Syndrome Family Conference.
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Brothers Ethan and Gavin are competitive swimmers. They both have Usher syndrome type 1B.