USH Ambassador for France
Mayank Agarwal
Mayank is the USH Ambassador for France and Germany and is currently based in Frankfurt, Germany. He is the proud dad of a son with USH1B (MYO7A) and is keen to empower USH patients & families by connecting them to relevant resources locally, and sharing experiences. Learn more about Mayank at LinkedIn
Contact Mayank at: ambassador.fr@usher-syndrome.org

Resources for France
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This free, confidential, and simple registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.