USH Ambassador for Oregon

Meagan Moore

Text Transcript of Meagan's video:

Image description: White woman with short, curly brown hair, smiles at camera. She is standing outside, with greenery is in the background:

Transcript: Hi! My name is Meagan Moore.I have Usher syndrome Type 2A. I am the Oregon USH Ambassador. I live here in central Oregon. I have 3 kids. I am looking forward to connecting with all of you and I just want you to know that we are in it together!

Contact Meagan at:

  • This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

  • Provides technical assistance, training, and information to support services for children in Oregon who are deafblind. The project serves children from birth through age 21 years.

  • Program and services for youth and adults with combined vision and hearing loss.

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

  • Programs, activities, videos, other information for individuals managing sight loss to network with others

  • Administered by the USH Ambassadors from Oregon and Washington state, this group is designed to connect those who have Usher syndrome, or a family member, with others in the Pacific Northwest. The hope is to find support, share stories of encouragement, and to know we are not alone!

  • Deb Marinos interviews adults living with Usher syndrome. Great information, insights, and resources!. Video is captioned

  • Oregon Ambassador Meagan Moore explains why she attended her first USH Connections conference in 2022.

  • Oregon's USH Ambassador, Meagan Moore, celebrates DeafBlind Awareness Week with an informative and fun video.

  • A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.