Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please email info@usher-syndrome.org or contact Julia Dunning at j.dunning@usher-syndrome.org

You can also reach us by phone:

Toll-Free: 1-855-998-7437 (1-855-99-USHER) Option 0

USH Trust Registry - 1-855-998-7437 Option 1

VP: 631-533-9621

Or by mail:

Usher Syndrome Coalition
63 Great Road, Suite 207
Maynard, MA 01754