Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please contact Krista Vasi at k.vasi@usher-syndrome.org or Mark Dunning at m.dunning@lek.com.

For information about the USH Trust, the international Usher syndrome registry, contact Nancy O'Donnell at n.odonnell@usher-syndrome.org.

You can also reach us by phone:

Toll Free: 1-855-99-USHER (1-855-998-7437)

Toll: 1-978-637-2625

Videophone (VP): 1-631-533-9621