Maine

This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

Program and services for youth and adults with combined vision and hearing loss.

Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

Assists state and local education agencies in developing the capacity to serve children and youth who are deafblind. NEC provides training and technical assistance, disseminates information regarding evidenced-based practices, provides parent training and networking activities, and collaborates with local and state agencies serving children who are deafblind or at-risk.

A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.