Welcome
Living with Usher syndrome can present challenges that are unique to this community, especially when you are a young adult. Difficulty seeing in dim lighting, reduced peripheral vision, managing devices and technology requires us to be attentive, resilient, resourceful and good time managers. This can be exhausting!
As young adults, we look forward to being more independent, selecting a college, or planning on a career. As we make these decisions, tt can be invaluable to have the support and guidance of others with Usher syndrome who have gone through these same situations. This section of the website was created to share with wisdom of young adults with Usher syndrome with each other. We encourage you to share your tips, tricks, hacks, suggestions and ideas with us! Email: info@usher-syndrome.org
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Other Resources
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For young adults between the ages of 18-30. Members share information about life, college, career, and self-advocacy, and is a place for everyone to talk about their experiences with Usher and ask questions of people with similar ones. Group members can also participate in virtual group calls.
Recent Blog Posts
“Heartbroken” Becca Meyers, a deafblind Paralympic athlete who has Usher syndrome, was told to navigate Tokyo alone. Instead, she takes a powerful stand for future generations.
Megan Lengel, a recent college graduate and young adult with Usher syndrome, has offered to share with us her valuable experience attending college while dealing with Usher syndrome.
