Facebook groups

  • F2FC brings families together to connect, share information and resources, and offer support to one another in the journey of supporting their family member with deaf-blindness. Each F2FC is comprised of 8-10 family members; is guided by trained Facilitators; meets once per month for 90 minutes via video conference or phone; topics are chosen by the group and include structured conversation and open sharing. Register by August 31st, 2022 for calls starting in September.

  • A group to support parents of kids with Usher Syndrome. We are specifically focused on finding information and treatment.

  • Family-to-Family Communities (F2FC) brings families together via distance technology to connect, share information and resources, and offer support to one another in the journey of supporting their family member with deaf-blindness. There is an F2FC group exclusively for parents of children with Usher syndrome.

  • A group for Mom's of adult children with Usher to share about their adult child with Usher syndrome--Mom to Mom.

Tools for Advocacy

Resources for Children

Books about Hearing Loss, Hearing Aids and CIs for Children

Resources in ASL

Books about Vision Loss for Children