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Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please email info@usher-syndrome.org or contact Julia Dunning at j.dunning@usher-syndrome.org

You can also reach us by phone:

Toll-Free: (800) 946-9203, Option 0

USH Trust Registry: (800) 946-9203, Option 1

VP: 631-533-9621

Or by mail:

Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886

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