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Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please contact Krista Vasi at

For information about the USH Trust, the international Usher syndrome registry, contact Nancy O'Donnell at

You can also reach us by phone:

Toll Free: 1-855-99-USHER (1-855-998-7437)

Toll: 1-978-637-2625

Videophone (VP): 1-631-533-9621

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