Get In Touch

Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please email or contact Julia Dunning at

You can also reach us by phone:

Toll-Free: 1-855-998-7437 (1-855-99-USHER) Option 0

USH Trust Registry - 1-855-998-7437 Option 1

VP: 631-533-9621

Or by mail:

Usher Syndrome Coalition
63 Great Road, Suite 207
Maynard, MA 01754

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