You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please email or contact Julia Dunning at

You can also reach us by phone:

Toll-Free: (800) 946-9203, Option 0

USH Trust Registry: (800) 946-9203, Option 1

VP: 631-533-9621

Or by mail:

Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886

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