Books by Authors with Usher Syndrome
These books are written by authors with Usher syndrome.
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Author Tiffany Kohnen covers 15 different topics and strategies meant to teach you about hearing loss.
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Author Tiffany Kohnen tackles 14 different topics and offers strategies meant to teach you about vision loss.
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This book, with text on the left and drawings on the right, clearly and more thoroughly explains the life of a person with USHER, from childhood to adulthood: the importance of putting words to your difficulties as soon as possible; adaptations at each age; different means of communication and; international testimonials from individuals who are DeafBlind and have USHER on their experience and the adaptations they have made with the help of their relatives or professionals.
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A front-row seat into how Kevin Frost's life changed when he heard his diagnosis and what he did to get through the depression that engulfed him to become an accomplished sportsman, a dad, a life partner, son, brother, teammate, and activist.
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Author Rebecca Alexander tells her extraordinary story, by turns harrowing, funny, and inspiring. She meditates on what she’s lost—from the sound of a whisper to seeing a sky full of stars, and what she’s found in return—an exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she still has, and a joy in simple pleasures that most of us forget to notice.
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The Kitty Fischer story, written by Cathryn Carroll and Catherine "Kitty" Hoffpauir Fischer.
The author describes her life and her cultural odyssey as a Cajun woman from Louisiana with Usher syndrome. Fischer is a former librarian at the Model Secondary School for the Deaf. -
"I was born deaf with Type 1 Usher Syndrome, but I didn't know it. This is how I gradually discovered that I did not see like everyone else, but without knowing that my eyes had a problem. I have always liked to travel. This book is an account of my travels; I tell you all the little tips you need to use to cope with your disability, with the help of others as well."
Published in 2020 -
Walk in My Shoes: An Anthology on Usher Syndrome is the first and only published book written by 28 writers who are touched by Usher syndrome. It is a web of biographies spun into a beautifully crafted book of hope.