USH Ambassador for Massachusetts

The USH Ambassador position for Massachusetts is open.

To apply to become an ambassador, fill out a Volunteer application

For more information, contact the Coalition at:

Resources for Massachusetts

  • Maintained by the Usher Syndrome Coalition, this is our most powerful tool to connect the community, learn about the community, and support research. It is exclusively for individuals of every age with any type of Usher syndrome, worldwide.

  • EI provides services and supports to babies and young children with developmental delays and disabilities and their families. There services may include speech therapy, physical therapy, and other types of services based on the needs of the child and family. Infants who fail the newborn hearing screening are eligible for these services, which can have a significant impact on a child’s ability to learn new skills and increase success in school and life.

  • Assists state and local education agencies in developing the capacity to serve children and youth who are deafblind. NEC provides training and technical assistance, disseminates information regarding evidenced-based practices, provides parent training and networking activities, and collaborates with local and state agencies serving children who are deafblind or at-risk.

  • Program and services for youth and adults with combined vision and hearing loss.

  • The DeafBlind Community Access Network (DBCAN) program works to empower DeafBlind people in Massachusetts to increase and sustain their independence in the community. They matche DeafBlind adults with trained providers who assist with accomplishing everyday tasks, such as: reading mail and other printed materials, exercising and participating in fitness programs, using the MBTA and other modes of transportation, doing personal errands (bank, hair salon, shopping, and more), and attending medical appointments. Additionally, this support ensures our DeafBlind community members can also engage in cultural, educational, recreational, and religious events.

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

  • ESTABLISHED IN 1936. Has been serving those with vision impairment for over eight decades. Located in Newton, Massachusetts. Serves all ages and all stages of vision loss.

  • McLean offers high-quality mental health treatment for individuals of all ages experiencing a wide array of symptoms and diagnoses

  • A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.