Tips for Living with Usher Syndrome

  • This website offers online training programs and competency exams in braille literacy and mathematics using the Unified English Braille (UEB) code. This program is suitable for anyone who wants to learn and teach braille. This includes educators, families, allied health professionals, administrators, and decision makers who promote the use of braille as a medium for information access and communication.

  • How does one adjust to life with low vision? Mississippi State University's National Resource and Training Center on Blindness and Low Vision has compiled a series called "Lessons for Living." This free, downloadable online resource provides tips and tricks for a variety of activities of daily living. This is not geared specifically to the Usher syndrome community but contains a wealth of resources and ideas that can be used by the community.

  • What is orientation and mobility (O&M)? How can it help you live your best life?

  • Take a look at these suggestions, compiled by USH Ambassador for MI, Sarah Turner.

  • SSPs are professionals who are trained to work with youth and adults with combined vision and hearing loss. They provide environmental information so that the young person or adult can make informed decisions or participate more fully in activities without having to rely on friends or family. Activities where an SSP may assist are: reading bills/invoices, grocery shopping, clothes shopping, participating in social activities, and/or participating in family events. Some states offer free SSP/CN services. Other states are advocating for such services. Contact your USH Ambassador or Helen Keller National Center regional rep for more information.