USH on Capitol Hill
Sign up and take action
Join the Usher Syndrome Coalition's team of USH Champions and make your voice heard. You can help ensure Usher syndrome research gets the federal funding it deserves.
Become an USH Champion
“I fight for my son, whose world will go dark and quiet if I do nothing. We have to KICK down the door and make DC hear us. No cure is not an option, never will be.”
Max Hunt, USH Champion, father of a child with Usher syndrome