There is no treatment yet for vision loss in Usher syndrome, and research depends on people willing to take part. You help connect our community to research.
Building a global Usher syndrome community brings us all closer to treatments and a cure.
Monthly giving is one of the most powerful ways to support the Usher syndrome community. Steady gifts let us plan ahead and be there for people with Usher syndrome all year long. When you give monthly, you become an USH Visionary. You can change or cancel your gift anytime.
Your gift helps us support and educate families, grow the USH Trust, and raise awareness of Usher syndrome. We also advocate for increased federal research funding and link researchers to their greatest resource: people with Usher syndrome.
Questions? Want to donate by phone?
Call: 1-800-946-9203
Or donate by mail, payable to "Usher Syndrome Coalition":
Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886
We are a 501(c)(3) Certified Organization. Your contribution is tax-deductible to the extent allowed by law. Tax ID: 26-4560897
We are committed to transparency and make our IRS Form 990s available for review. View our Candid Profile for more information about our programs, results, and past financials, or view our Form 990s on ProPublica Nonprofit Explorer.
If you are 70½ years old or older, you can take advantage of a simple way to benefit the Usher Syndrome Coalition and receive tax benefits in return.
