There is currently no cure for Usher syndrome. You have the power to change that. Building a global Usher community moves us all closer to treatments and a cure.

We invite you to join our USH Visionaries, a group of committed supporters who give monthly to support the community-building efforts of the Coalition. Become an USH Visionary here.

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You will receive email confirmation upon submitting your donation. This confirmation serves as your tax receipt, if applicable.

If you are 70½ years old or older, you can take advantage of a simple way to benefit the Usher Syndrome Coalition and receive tax benefits in return. Learn more.

Your gift will help us support and educate families, expand the USH Trust and use the power of an energized community to raise awareness and increase funding for Usher syndrome research. By investing in the Coalition, you help us link researchers to their greatest resource: people with Usher syndrome.

Questions? Want to donate by phone? 

Call: 1-800-946-9203

Or donate by mail:

Usher Syndrome Coalition
9 Cornerstone Square, Suite 400-224
Westford, MA 01886