USH Ambassador for Mississippi

Danay Trest

Image description: White woman with short brown hair speaks into the camera. A bare wall is directly behind her. A partial view of a window with curtains is to her right.

Transcript: Hi USH family! Danay Trest from Mississippi. I'm currently serving as a board member for the Usher Syndrome Coalition and I'm the ambassador for the state of Mississippi. I also serve on a couple of non-profit organizations at the state level, which are the Deafblind Community of Mississippi, and the Mississippi Hearing/Vision project.

If you know of anyone, or yourself, that needs some assistance or a sense of direction "Where do I go to from here ?" - or just need someone to talk to, please - by all means - feel free to reach out to me. I know what it's like feeling alone. I dealt with that for over 21 years until I finally said I can't handle this anymore by myself. I wish I could have been where I am today even 10 years ago, but nevertheless, always know you're not alone. We're here for you.

We love you. We're going to support you all the way. Thank you! Have a great day.         

Contact Danay at:

Resources for Mississippi

  • This free and confidential registry, maintained by the Usher Syndrome Coalition, is the only registry exclusively for individuals of every age with any type of Usher syndrome, worldwide. By registering, you become part of a growing global community. The registry is our most powerful tool to connect the community, learn about the community, and support research.

  • Provides technical assistance to individuals with combined vision and hearing loss between the ages of birth and 21 years.

  • Program and services for youth and adults with combined vision and hearing loss.

  • Managed by Danay Trest, USH Ambassador for Mississippi

  • Provides free telecommunication evaluation, equipment, and training to children and adults with significant vision and hearing loss who qualify. iCanConnect is a national program authorized under the National Deaf-Blind Equipment Distribution Program.

  • The mission of DBCM is to promote the social well-being of the DeafBlind, Deaf, and Blind communities in Mississippi.

  • A national volunteer organization created to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.