Bridging the gap between researchers and those living with Usher syndrome.

Welcome to our new one-stop signup! When you identify your connection with the Usher community, you’ll be able to choose how you want to stay connected: 

  • Sign up for our mailing list - stay current with the latest happenings in the Usher Syndrome Coalition community.
  • Join the USH Trust - if you or your child has Usher syndrome, this is our most powerful tool to connect, inform, and support individuals within the Usher community. Be sure to check the "USH Trust" box at the bottom of the form to open up the USH Trust questions (under Personal Information).
    • If have Usher syndrome and would like to connect with others in the community, click here.
  • Researchers and clinical providers - the community wants to connect with you! Add your name to our directory of specialists, helping us bridge the gap between researchers and the Usher syndrome community.