Always be the first to know what’s happening in the Usher Syndrome Coalition community.

If you have Usher syndrome, you can join our USH Trust to help build the international Usher community. This will automatically add you to our mailing list.

Family, friends, and anyone who is interested in Usher syndrome can sign up for our email newsletter by filling out the form, below. You can also join us on Facebook, Twitter and Instagram. These small efforts will keep you informed and help spread the word about Usher syndrome.

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