Brazil

The Usher Syndrome Coalition's "USH Trust" is the largest international contact database of children and adults with Usher syndrome, and our most powerful tool to connect, inform, and support individuals within the Usher community. Those who join the USH Trust are also the first to learn about the latest research opportunities. Information in the USH Trust is confidential and is not shared outside of the Coalition.

Este grupo é aberto a todos os portadores de Síndrome de Usher e aqueles que dedicam e atuam com pessoas portadoras desta síndrome. O grupo tem como objetivo compartilhar notícias, eventos, trocar experiências, fazer novas amizades, enfim tudo relacionado com Síndrome de Usher.