Unraveling USH: Progress in Research to Treat Usher Syndrome

Here you will find summaries of the treatment approaches and research progress for all subtypes of Usher syndrome. (To learn more about the basics of Usher syndrome and the three clinical types, click here.) 

Cell-Based Therapy Approaches

Current Open Clinical Trials/Natural History Studies

Gene-Specific Research:

You are not alone.

Join the USH Trust to be informed of clinical trials and the latest advances in research. 

Join the USH Blue Book to connect with individuals with Usher syndrome, family members and friends in a global network of support.

Locate experts in the USH Yellow Book, a centralized directory of researchers and resources worldwide.