The Usher Syndrome Coalition’s international Scientific Advisory Committee is made up of leading researchers and physicians who volunteer their expertise to advance our mission. Their role is to guide and strengthen the Coalition’s work by providing scientific and medical insight, identifying unmet needs within the Usher syndrome community, and ensuring that our programs, partnerships and communications meet the highest standards of rigor and accuracy.
This distinguished group advises on data collection initiatives, reviews educational and scientific materials, and collaborates with our staff and Board of Directors to help shape strategies that raise awareness and improve resources for the global Usher syndrome community. The Usher Syndrome Coalition is proud to introduce our Advisors, each of whom brings valuable expertise and commitment to supporting individuals and families affected by Usher syndrome.
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Associate Professor; Research Director at Institut Pasteur, Paris; Progressive Sensory Disorders: Pathophysiology and Therapy.
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Associate Professor of Ophthalmology, Harvard Medical School; Director, Inherited Retinal Disorders Clinical Trials, Massachusetts Eye and Ear
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Director of Clinical Research, Boston Children's Hospital's Department of Otolaryngology and Communication Enhancement
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Associate Professor of Otolaryngology & Biocommunications; Adjunct, Departments of Ophthalmology and Genetics, LSU Health New Orleans
