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Learn More about usher syndrome

Usher syndrome Research

Usher syndrome is the most common genetic cause of combined deafness and blindness. Learn more about the basics of Usher syndrome.

Discover the progress in research to develop treatments on our Current USH Research page.

We summarize the latest science news and "What it means for Usher syndrome." Read Science News by treatment approach or Usher subtype.

Genetic testing is the only way to know for sure if you have Usher syndrome. Genetic confirmation can help you understand your type of USH. It's also necessary to participate in research (clinical trials). Learn how to get genetic testing.

For more information, visit our Frequent Questions page.

You are not alone.

Join the USH Trust to be informed of clinical trials and the latest advances in research. 

Join the USH Blue Book to connect with individuals with Usher syndrome, family members and friends in a global network of support.

Locate experts in the USH Yellow Book, a centralized directory of researchers and resources worldwide.

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