• Usher syndrome is the most common genetic cause of combined deafness and blindness.

  • Discover the progress in research to develop treatments.

  • We summarize the latest science news and "What it means for Usher syndrome." Read Science News by treatment approach or Usher subtype.

  • Genetic testing is the only way to know for sure if you have Usher syndrome. Genetic confirmation can help you understand your type of USH. It's also necessary to participate in research (clinical trials).

  • Find the answers to the questions most commonly asked about Usher syndrome.

  • Be informed of clinical trials and the latest advances in research.

  • Connect with individuals with Usher syndrome, family members and friends in a global network of support.

  • Locate experts in the USH Yellow Book, a centralized directory of researchers and resources worldwide.