Providing information, connections, and hope to the Usher syndrome community.

This video podcast delivers the latest in research developments and community stories directly to you. 

On this page, browse our full USH Talks library, including downloadable transcripts and slides, or explore our YouTube Channel.

USH Talks Library:

USH2021 Connections Conference Panel Discussions

USH2020 Connections Week Presentations

Support Services

Research Updates

Primers

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Disclaimer: The information contained on the Usher Syndrome Coalition website and other online properties is provided for your information only. The Coalition is neither a medical service nor a scientific organization. It provides information concerning the various types of Usher syndrome that includes information developed or derived from unrelated third parties over which the Coalition has no involvement or control. The Usher Syndrome Coalition does not independently, nor in conjunction with others, attest to, deny, or comment upon the merits of the accuracy of the information provided by unrelated third parties. No reliance on medical or scientific information contained on this website should be taken by any person. You should always consult with and be guided by your Physician’s advice when considering treatment based on research results.