WHY BECOME A BOARD MEMBER?
The Usher Syndrome Coalition (USC) is the only organization in the world seeking to identify and support every person living with Usher syndrome. By providing hope, connection and information, we are building an active, empowered and informed community. This gives researchers access to their most important resource: people living with Usher syndrome. Building a community will ensure treatments and a cure become a reality.
Board members are expected to share knowledge of the USC, advocate for the USC, and directly or indirectly support the financial initiatives of the USC.
WHO IS ELIGIBLE TO APPLY?
Anyone with a personal or professional connection to Usher syndrome and a desire to help the Usher Syndrome Coalition realize its vision to find, support and connect the 400,000+ people living with Usher syndrome worldwide with researchers, vital information, and others in the Usher syndrome community.
HOW TO APPLY:
- Complete the online form below, or
- Download the application here and scan/email to Krista at firstname.lastname@example.org or mail completed form to:
Usher Syndrome Coalition, 9 Cornerstone Square, Suite 400-224 Westford, MA 01886 USA.
If you have questions, please email Krista at email@example.com or call 1-800-946-9203.