Usher Syndrome Science News
While there is no treatment or cure for Usher syndrome yet, research & clinical trials are ongoing that show potential for future treatment options. Here you will find summaries of the latest research and science news. The three major potential treatment approaches are gene therapy, stem cell therapy, and drug-based therapy.
To learn more about the current research for genetic mutations that are known to cause Usher syndrome, click on USH Genetics Research. To read about the current research relating to a specific USH subtype, click on the desired subtype under the "News by Usher type" heading.
To learn what the three subtypes of Usher syndrome are, click here.
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Disclaimer: The information contained on the Usher Syndrome Coalition website and other online properties is provided for your information only. The Coalition is neither a medical service nor a scientific organization. It provides information concerning the various types of Usher syndrome that includes information developed or derived from unrelated third parties over which the Coalition has no involvement or control. The Usher Syndrome Coalition does not independently, nor in conjunction with others, attest to, deny, or comment upon the merits of the accuracy of the information provided by unrelated third parties. No reliance on medical or scientific information contained on this website should be taken by any person. You should always consult with and be guided by your Physician’s advice when considering treatment based on research results.
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Join the USH Blue Book to connect with individuals with Usher syndrome, family members and friends in a global network of support.
Locate experts in the USH Yellow Book, a centralized directory of researchers and resources worldwide.