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Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this worldwide. There is currently no cure for Usher syndrome, but there is a growing USH community.

Our Mission

The mission of the Usher Syndrome Coalition is to raise awareness and accelerate research while providing information and support to individuals and families affected by Usher syndrome. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved. 

Usher Syndrome Blog & News

A team of researchers at Tel Aviv University are studying a virus-based gene therapy approach to treat deafness by replacing the non-functioning gene with a functional copy.

Case study and one year follow up on five patients with end-stage RP that received retinal implants.

Lentivirally modified mesenchymal stem cells from bone marrow shows promise in preserving retinal function and preventing further retinal degradation.

A type of laser light therapy called photobiomodulation shows promising results in the ability to preserve retinal performance, structure and function.

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