USH Event Calendar

We believe the key to finding viable treatments for Usher syndrome is the development of a strong Usher syndrome community, our #USHFamily. 

Participating in USH events helps our community grow. Just bookmark this page and check back often for the latest programs and events.

Hosted in partnership with the National Technical Institute for the Deaf

Please join us at the largest gathering of the Usher syndrome (USH) community!

The Usher Syndrome Coalition's USH Connections Conference is an incredible opportunity to learn the latest on developing treatments from leading USH researchers while connecting with hundreds of individuals and families living with Usher syndrome and professionals serving the deafblind community.