Hosted in partnership with the National Technical Institute for the Deaf

Please join us at the largest gathering in the Usher syndrome (USH) community!

The Usher Syndrome Coalition's USH Connections Conference is an incredible opportunity to learn the latest on developing treatments from leading USH researchers while connecting with hundreds of individuals and families living with Usher syndrome and professionals serving the deafblind community.

The autumnal equinox marks the start of days that contain more darkness than light. It is a great metaphor for the threat of Usher syndrome. We want to Own the Equinox, claiming the third Saturday in September as Usher syndrome awareness day. But to do so, we need your help. We want this to be a worldwide event that starts on one side of the world (we're looking at you, Australia) and runs around the globe to the farthest point before the international date line (that’s your cue, Alaska).