2022 USH Connections Conference Scholarship Application

The 2022 USH Connections Conference Scholarship Program will enable individuals with Usher syndrome (USH) and their families to attend the 14th Annual USH Connections Conference in-person in Austin, Texas, or virtually, on July 8-9th, 2022. This annual gathering provides the opportunity for individuals with Usher syndrome, family members, friends and professionals to learn of the latest advances in research, while connecting with others impacted by Usher syndrome and engaging with researchers who are working tirelessly toward treatments.


  • Scholarship is based on financial need to enable the inclusion of a family or individual who would otherwise be unable to attend.
  • Preference will be given to first-time conference attendees.
  • Applicant must commit to attending the entire conference and completing the post-conference evaluation.
  • Applicant must join the USH Trust Registry. Registration is free and simple. Your privacy is protected and will ensure you will be informed of current trials, studies and the latest advances in research. You can join here: www.usher-registry.org


  • Applicant must submit completed application by April 15, 2022.
  • Scholarship award winners will be notified by May 6, 2022.
  • Applicant is responsible for making their own transportation arrangements.


  • Scholarship covers two nights (July 8 and July 9, 2022) at the Austin Southpark Hotel, and conference registration fees (including Friday afternoon breakout sessions, Saturday full-day conference, Saturday breakfast, lunch, evening social and childcare, if applicable) for up to two adults and two children, in addition to the individual with USH.
  • The scholarship recipient will understand that no cash or check will be furnished to them for the conference. These items will be paid directly by the Usher Syndrome Coalition.


  • Complete the online form below, or 
  • Download the application here and scan/email to Krista at k.vasi@usher-syndrome.org or mail completed form to: Usher Syndrome Coalition, 9 Cornerstone Square, Suite 400-224 Westford, MA 01886 USA.

If you have questions, please email Krista at k.vasi@usher-syndrome.org or call 1-800-946-9203.

Application Form

Have you attended an USH Connections Conference (formerly the Usher Syndrome Family Conference) before?
How would you like to participate in the conference?
I have read and meet the above listed eligibility terms. If I am unable to attend the conference, I will notify the Usher Syndrome Coalition by May 15, 2022 so that the scholarship may be awarded to another recipient.