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USH2020 | Austin, Texas | July 10-11, 2020

12th Annual USH Connections Conference: USH2020

Presented by the Usher Syndrome Coalition
July 10-11, 2020
Omni Austin Hotel at Southpark, Austin, Texas


The Coalition is closely monitoring ongoing developments in the coronavirus (COVID-19) spread. 

The Usher Syndrome Coalition’s Board of Directors is evaluating the status of this event, with the guidance of up-to-date information released by the Centers for Disease Control and Prevention (CDC) and other advisories within the United States and worldwide. Decisions will be communicated to all of our contacts immediately.

Attendees describe this conference as "life-changing," an event with a positive atmosphere and a genuine sense of community. At the USH Connections Conference, you will connect face-to-face with hundreds of people who "get it," meet and network with others facing the same challenges, and learn the latest on developing treatments from leading USH researchers. 


It's a family affair! Program designed specifically for USHkids at the USH2020 Conference
USHangouts is presented by Ava’s Voice, an official USH Partner of the Usher Syndrome Coalition. This is an opportunity for youth with Usher syndrome and their siblings (birth-17 years) to make face-to-face connections with their peers at the annual USH Connections Conference. There are programs designed specifically for three age groups (Birth-4: USHbabies; Ages 5-10: USHkids; Ages 11-17: USHteens), and counselor opportunities are available for adults with Usher syndrome (ages 18-21: USHleaders). Limited space is available.

Breakout Sessions on Friday, July 10th
This year, we are pleased to announce that we are adding an afternoon of breakout sessions on Friday, July 10th. These sessions are in direct response to requests from the community for opportunities to connect and converse in small settings. Session topics will include Parents of Children with Usher Syndrome, Young Adults Living with Usher Syndrome (18 and older), and Quality of Life: Living and Thriving with Usher Syndrome.

WHEN: Friday and Saturday, July 10-11th, 2020
WHERE: Omni Austin Hotel at Southpark
4140 Governors Row
Austin, Texas 78744

(Early Bird Rate for adults ends March 15th)


Deadline to reserve hotel room is June 19, 2020

Reserve your room for Thursday, Friday and Saturday nights at the Omni Hotel at the reduced rate of $119/night here:
or call 1-800-The-Omni (1-800-743-6664) and refer to the “Usher Syndrome Coalition USH Connections Conference” Room Block.


  • Participants are encouraged to bring their own Support Service Provider (SSP) if needed. The conference registration fee will be waived for personal SSPs. A limited number of volunteer SSPs will be available upon request.
  • Please include requests for close vision and tactile/ProTactile interpreters and/or an assistive listening device in your registration. Platform interpreters and CART live captioning will be provided at the general session for the benefit of all. 
  • Conference materials will be available in a digital format designed for screen reader-braille display and low vision. The final conference agenda will be available two weeks before the conference on the event website and app.

March 15, 2020: Early Bird Rate ends for Adult Attendees
March 31, 2020: Early Bird Rate ends for Exhibitors
March 31, 2020: Deadline to submit Presentation Abstracts
June 5, 2020:
Special Requests (childcare, interpreters, sighted guides, assistive listening devices, etc.)
June 19, 2020: Hotel Reservations Deadline
June 30, 2020: Registration Cancellations
Written cancellations received by June 30th will receive a full refund. No refunds will be issued after June 30th. (Email Julia at to cancel.)
June 30, 2020: Registration Deadline


CURIOUS ABOUT THE CONNECTIONS CONFERENCE? Check out summaries and transcripts from some of our past events here.

QUESTIONS? Call us at (978) 637-2625 or email Julia at

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