World Rare Disease Day
Rare Disease Day takes place on the last day of February each year.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Rare Disease Week on Capitol Hill
During this exciting week, rare disease community members from across the country learn about federal legislative issues, meet other advocates, and share their unique stories with legislators. - See more at: http://rareadvocates.org/rdw/#sthash.NZjco2gv.dpuf
