Contact Us

You are not alone.

For information about the Usher Syndrome Coalition and the resources available to you, please contact Krista Vasi at k.vasi@usher-syndrome.org 

For information about the USH Trust, the international Usher syndrome contact database exclusively for the USH community, contact Nancy O'Donnell at n.odonnell@usher-syndrome.org.

You can also reach us by phone:

Toll Free: 1-855-99-USHER (1-855-998-7437)

Toll: 1-978-637-2625

Videophone (VP): 1-631-533-9621

Please feel free to submit any questions, suggestions, or general feedback in the space below. We appreciate your comments or concerns and will respond to them as soon as we can.