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The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

  • Heroes

    The confidentiality of the [clinical trial] process means I'll never know the name of those that do participate. I'll never shake their hand. They will never know what they mean to me, to my daughter, to the hundreds of thousands of people with Usher.

  • Sense of Humor

    Sometimes you just have to laugh.


Usher Syndrome Coalition Members: