The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Kerry Thompson on 09/30/2015
Kerry Thompson shares her story about the challenges she has faced living with Usher syndrome, and how her family has played an essential role in her success.
Posted on 09/25/2015
Researchers applied next generation sequencing to characterize the mutation spectrum in 67 independent Chinese families with at least one member diagnosed with USH.
Diana Velarde on 09/19/2015
Diana lives in Mexico City and has Usher syndrome type II. She has become an active member in the Usher community and aspires to do so much more for others with Usher syndrome, both globally and locally.
Collin Eisema on 09/19/2015
Collin helped create Ushersyndroom.nl, an organization working to raise awareness and fund treatments in Holland. Collin also has Usher syndrome type 2a.