Usher syndrome is the most common genetic cause of combined deafness and blindness. More than 400,000 people are affected by this disorder worldwide. There is currently no cure for Usher syndrome.
The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Arts for USH (formerly Kidz b Kidz/KbK) and the Corderman family are bringing awareness of Usher syndrome to the Needham community.
So here we are, a group of diverse people, angry, frustrated, worried, and shocked. Yet, despite all of that, we here in the Usher Syndrome Community have NEVER been more united.
This Giving Tuesday, we're giving back to YOU, our USH Family, with the release of our first USH Talk, a new podcast for the Usher syndrome community.
Mark Dunning describes how the one thing he did right as a parent is all the stuff he did wrong. He failed. Often miserably.
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