The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Mark Dunning on 08/04/2015
Did you know that regular exercise may actually help you keep your vision longer?
Mark Dunning on 08/03/2015
We need to cure the most common cause of combined deafness and blindness. And we can do it. On September 19th, Usher Syndrome Awareness Day, let’s demonstrate that power to make the impossible possible.
Posted on 07/20/2015
Geneticist Heidi Rehm, founding member of the USC, is "at the forefront of a genetic revolution in medicine..."
Read the full article about her career and work in Middlebury Magazine.
Mark Dunning on 07/20/2015
On September 19th, we want to Own the Equinox. We need a global Usher Syndrome Awareness Day and we're going to have one.