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The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

  • Uncertainty and Uncertainty

    "That future will have good things in it. It's not a given. It can't be taken for granted. But tomorrow has never been anything more than hope." Mark Dunning discusses the uncertainty that lies ahead for his family as they hope for a bright future.

  • Independence Day

    "...our society- the world's society- is not set up to allow a deaf/blind person to be fully independent, no matter how much the person wants his independence." Charlotte goes undercover as an Usher 1 person at Boston's Fourth of July Celebration


Usher Syndrome Coalition Members: