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The Coalition for Usher Syndrome Research is dedicated to helping families cope with Usher Syndrome while working diligently to find a cure. Our goal is simple: Provide hope to families with Usher Syndrome. Hope here comes in many forms, from the opportunity to connect with other families, to the ability to access the latest information from the world's leading researchers, to the chance to directly participate in the search for a cure.

The Coalition counts a number of leading institutions and researchers among its members. Members bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Coalition for Usher Syndrome Research strives to be the most comprehensive source of information on Usher Syndrome and the tremendous efforts being made to find a cure.

So please join us. There is hope.

  • State of Mind

    About a month ago I wrote that I was dealing with depression and anxiety. It now seems like the right time to answer the question a good friend asked me: "How's your brain doing?"

  • House Testimony by Mark Dunning

    Text of the testimony submitted by Mark Dunning, father of a daughter with Usher, before the House Labor Health and Human Services sub-committee on March 28, 2014.