The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Moira Shea on 09/01/2015
Moira Shea can see the treatments coming. They are just ahead of us. Usher syndrome will fade away as our vision for a cure remains strong. So set the challenge for September 19th and own the equinox, when the world goes more into darkness than light. The light will come back.
Elise Faucheaux on 08/31/2015
Since Day 1, Elise and her family have been trying to make Usher syndrome common knowledge.
Molly Watt on 08/28/2015
In honor of Usher Syndrome Awareness Day on 19 September, Molly wants to show the world what our community looks like.
Jessica Chaikof on 08/27/2015
Every day, a person with Usher syndrome faces numerous obstacles. Despite this, Jessica refuses to let anything stop her.