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The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

  • Live from Louisiana: Tweet with Jack

    Jack Dunning will take over our twitter handle to bring you live updates from the Usher syndrome conference in Baton Rouge, Saturday, October 25th.

  • 50 Million Reasons

    Mark Dunning shares fifty million reasons why your investment in the Usher Syndrome Coalition is critical to helping find a cure.


Usher Syndrome Coalition Members: