The Usher Syndrome Coalition is working to raise awareness and accelerate research, while providing information and support to impacted individuals and families. We strive to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. Learn more and get involved.
Mark Dunning on 11/19/2015
Here in the U.S. we are coming up on our traditional Thanksgiving Holiday. I figured it was a good time to say thank you to everyone who has helped the Usher Syndrome Coalition and the Usher syndrome community this year.
Posted on 11/16/2015
Saturday, July 9th, 2016: The Usher Syndrome Coalition presents the 8th Annual Usher Syndrome Family Conference, an opportunity to connect with others impacted by Usher syndrome, engage with researchers and learn the latest about the causes, management and treatments of Usher syndrome.
Mark Dunning on 11/13/2015
The Usher syndrome community lost one of our best this week when Steffen Suchert passed away.
Mark Dunning on 10/26/2015
Bella is fine. Julia and I are both under strict orders to stop worrying. She doesn’t like seeing us sad or mopey. She doesn’t want us to ask how she is doing. The answer is she is fine.