Krista Vasi, MPA​​​​​​
Executive Director, Usher Syndrome Coalition

July 8-9, 2022: Krista shares how you can join the Usher Syndrome Coalition and help ensure Usher syndrome research gets the federal funding it deserves.

Watch this presentation in ASL:

Download the transcript in English 
Ver la transcripción en español
Download the presentation slides

Do you have a Member on the Senate and House Appropriations LHHS Subcommittees?
View the Members of Congress for our USH Champions 

Speaker Bio:  

Krista Vasi serves as executive director of the Usher Syndrome Coalition, a global nonprofit organization dedicated to raising awareness and accelerating research for Usher syndrome, the most common genetic cause of deafblindness. Krista has been with the Usher Syndrome Coalition since its inception in 2008. Since that time, she has led three main initiatives: forging relationships with researchers dedicated to Usher syndrome, identifying and strengthening the Usher community worldwide, and building an international registry exclusively for individuals with Usher syndrome. 

Prior to joining the Usher Syndrome Coalition, she was Director of Operations for the Decibels Foundation, a nonprofit organization dedicated to supporting children with hearing loss and their families. Krista received her Bachelor of Arts degree in Global Studies from the University of California, Santa Barbara, and her Master's Degree in Public Administration, with a focus on Nonprofit Management, from the Maxwell School of Syracuse University.

Suggest a topic for a future USH Talk: