March 2016: Usher Syndrome Coalition featured in Mediaplanet Vision & Hearing Health Campaign
Unraveling Usher Syndrome: Identification, Treatment and A Cure
In the latest Mediaplanet USA, Nancy O'Donnell, director of the International Usher Syndrome Registry reminds us of the importance of being recognized as someone with - or a parent of a child with - Usher syndrome. Of the 400,000 people worldwide dealing with Usher syndrome, the research community is in touch with less than 1%. We aim to change that https://www.usher-registry.org/
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