Facebook groups

  • A group to support parents of kids with Usher Syndrome. We are specifically focused on finding information and treatment.

  • Family-to-Family Communities (F2FC) brings families together via distance technology to connect, share information and resources, and offer support to one another in the journey of supporting their family member with deaf-blindness. There is an F2FC group exclusively for parents of children with Usher syndrome.

  • A group for Mom's of adult children with Usher to share about their adult child with Usher syndrome--Mom to Mom.

Tools for Advocacy

Resources for Children

Resources in ASL

Children's Books About Visual Impairment

Books about Hearing Loss, Hearing Aids and CIs for Children