The cost and turn-around-time of a genetic test may vary depending on the lab and the methods used for testing. Some Usher screens cost around $500. More accurate and detailed testing may cost between $2000-$5000. A typical range of time to get the results might be 8-12 weeks. Insurance companies will often pay for genetic tests, but you should check with your company before your doctor orders the test.
Individuals living in the United States who suspect they have Usher syndrome may be eligible for free genetic testing through the: Open Access Genetic Testing Program
When you receive your results, please be sure to update your USH Trust Registry.