The Usher Syndrome Coalition is launching our first "USH Local Social" events in 2023. This initiative is in direct response to the Usher community's request to meet others in their home communities. Local socials may be virtual or in person. We will add locations and events here as information becomes available. If you are interested in hosting an USH Local Social in your area, reach out to us at info@usher-syndrome.org.

2023 Locations

Upcoming Events:

  • Usher Syndrome in Louisiana: Two Day Event | Educational Symposium + USH One See 5K & 1 Mile Fun Run
    Friday, September 15, 12 to 6 p.m.: Free Educational Sessions and Lunch at the Cecil J. Picard Center
    Saturday, September 16, 7 a.m. to 12 noon: USH ONE SEE 5K and 1 Mile Fun Run at the River Ranch-Town Square, Lafayette

  • Sedona, Arizona, September 15-17

    Members of the "Awesome Moms with USH" group will hike and gather at the Red Rocks of Sedona. The group will be hiking with “Sedona Dave," the creator of the new All Terrain Cane.

  • Members of Florida Usher Syndrome Support Group - This is the third and final Florida Usher Syndrome Local Social planned for this summer. Let’s get together and celebrate USHER SYNDROME AWARENESS DAY! Come meet other individuals with Usher syndrome and their families. We can enjoy lunch and have fun getting to know each other. And learn more about what’s going on with the Usher Syndrome Coalition this year! NOTE: Attendees are responsible for their own transportation, meal, and CoNavigator/SSP services.
    When - September 16th, 11:30 am
    Where - T.G.I. Friday's
    4151 Millenia Blvd.
    Orlando, FL 32839

Past Events:

  • Jacksonville, Florida, August 5

    This is the second of 3 Florida Usher Syndrome Local Socials being planned for this summer. Come meet other individuals with Usher syndrome and their families. We can enjoy lunch and have fun getting to know each other. And learn more about what’s going on with the Usher Syndrome Coalition this year! NOTE: Attendees are responsible for their own transportation, meal, and CoNavigator/SSP services.
    When: August 5th, 11:30 am
    Where: Joe's Crab Shack
    6 Beach Blvd
    Jacksonville Beach, FL 32250

  • Carnation, Washington, August 18-19

    Hear See Hope/Lane of Inquiry will be hosting a 2-day event focused on education and connection. On Friday afternoon, Rebecca Alexander will be leading a discussion on mental health and Lane McKittrick will be leading a discussion on IEP Development. Saturday, a social with lunch will be held at the McKittrick family ranch. A nearby hotel block is available. For more information, see the registration website.