Wednesday, May 12
Living with USH Panel - Panel Discussion
1:00-2:30 pm EDT
This week is about YOU, the Usher syndrome community. Meet some of the members of your USH Family.
Getting to know “USH” Parent Session 1
2:30 – 4:00 EDT
For parents of children with Usher syndrome of any age.
Thursday, May 13
Getting to know “USH” Parent Session 2
7:00-8:30 pm EDT
For parents of children with Usher syndrome of any age.
Friday, May 14
Young Adults Zoom Meet-up
5:00-6:30 PM EDT
For young adults living with Usher syndrome (ages 18-28)
Saturday, May 15
Supporting Mental Health in Usher Syndrome - Panel
9:30-11:00 AM EDT
Panelists: Rebecca Alexander, LCSW-R, MPH; Ashley Benton, MSW; Deb Marinos, MS; Lisa Rowinski, MA, LLPC, NIC
USHangout for USHkids (7-11yrs)
11:00-12:00 pm EDT
Ask the Researchers Q&A Panel
1:00-2:30 pm EDT
Moderator: Margaret Kenna, MD, MPH
Panelists: Gwenaelle Geleoc, PhD; Karl Koehler, PhD; Jennifer Lentz, PhD
USHangout for USHyouth (12-17yrs)
2:30-4:00 pm EDT
Sunday, May 16, 2021
USHangout for USHittles (0-6yrs)
11:00-12:00 pm EDT
(Español)
UN VISTASO A LA AGENDA
MIERCOLES 12 DE MAYO
"Viviendo con el Síndrome de Usher” Mesa Redonda
1:00-2:30 pm EDT
Llegando a Conocer “USH” Sesión de Padres 1
2:30-4:00 pm EDT (7:30-9:00 pm UK GMT)
JUEVES 13 DE MAYO
Llegando a Conocer “USH” Sesión de Padres 2
7:00-8:30 pm EDT (10:00-11:30 am AEST Friday, 14th May)
VIERNES 14 DE MAYO
"Jóvenes Adultos Zoom Meet-Up" (18-28 años)
5:00-6:30 pm EDT
SABADO 15 DE MAYO
"Apoyando Salud Mental en el síndrome de Usher” Panel
9:30-11:00 am EDT
"Sesión para niños “USHangout for USHkids" (7-11 años)
11:00-12:00 pm EDT
"Pregunte a los Investigadores” Panel de Preguntas & Respuestas
1:00-2:30 pm EDT
“Sesión para jóvenes "USHangout for USHyouth" (12-17 años)
2:30-4:00 pm EDT
DOMINGO 16 DE MAYO
"Sesión para pequeños “USHangout for USHlittles" (0-6 años)
11:00-12:00 pm EDT
