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December 2008: Congressional Briefing on Usher Syndrome

The Alliance for Eye and Vision Research, in conjunction with The Foundation Fighting Blindness, is holding a congressional briefing on Usher syndrome on February 5th. Bill Kimberling will be the main speaker. The briefings attract mostly the health staff of the Congresspersons and Senators but often they actually show up themselves. In addition, NEI will have a rep there to discuss NEI efforts and talk about collaboration with the Deafness and Neurological Institutes. This person, along with Stephen Rose from the FFB, will give an opening statement, but Dr. Kimberling will be the primary attraction. The briefing will talk about the clinical picture, the importance of screening, and what new work is being done.

The luncheon presenter will be William J. Kimberling, Ph.D., a leading researcher with Boys Town National Research Hospital Center for the Study and Treatment of Usher Syndrome in Omaha Nebraska. He is a Professor of Ophthalmology at the Carver School of Medicine in Iowa City as well as a Professor with the Department of Biomedical Sciences at the Creighton University School of Medicine and an Adjunct Professor with the Department of Special Education and Communication Disorders at the University of Nebraska. Dr. Kimberling is also the Director for the Center for Hereditary Communication Disorders at Boys Town National Research Hospital and a founding member of the Coalition for Usher Syndrome Research.

Dr. Kimberling will discuss the latest research in diagnosis and understanding Usher Syndrome, especially how researchers studying deafness and retinal degenerations are working together toward potential treatments. 
About the Alliance…
The Alliance for Eye and Vision Research (AEVR), a 501(c)3 non-profit foundation dedicated to education about the importance of federal funding for eye and vision research, is pleased to host this widely attended event.
About FFB…
The Foundation Fighting Blindness, Inc., is a 501(c)3 non-profit foundation dedicated to research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher Syndrome, and the entire spectrum of retinal degenerative diseases.

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