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Usher Syndrome Awareness Day


Saturday, September 21, 2019

We invite you to join the Usher Syndrome Coalition in celebration of our 5th annual global Usher Syndrome Awareness Day!

In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It was even entered into the United States Congressional Record!

This day falls near the autumnal equinox in the northern hemisphere, marking the start of days that contain more darkness than light - a powerful metaphor for the threat of Usher syndrome and why we "Own the Equinox" each year at this time.

In support of the Coalition's community-building efforts, here are a few ways you can get involved:

2018 Highlights

Take a look at some events that took place in 2018 in recognition of Usher Syndrome Awareness Day:

September 4: USH Awareness Day Proclamation Presentation  | Middletown, New Jersey
September 4: USH Awareness Day Proclamation Presentation | Scotch Plains, New Jersey
September 5: USH Awareness Day Proclamation Presentation | Wayne County, Pennsylvania
September 6: USH Awareness Day Proclamation Presentation | Northampton, Massachusetts
September 13: USH Awareness Day Proclamation Presentation, Monmouth County | Freehold, New Jersey
September 14:
Strike out USH Tampa Bay Rays Game | Tampa, Florida
September 14: UsherKids Australia Conference | Victoria, Australia
September 14: Usher Syndrome Society Shine a Light Portrait Exhibit | Victoria, Australia
September 15: Usher Syndrome Awareness Day Walk | Brazil
September 15: Usher Syndrome Awareness Day Rally | Lagos, Nigeria
September 20: Comedy Night to benefit the Coalition | Giggles Comedy Club, Saugus, Massachusetts
September 22: Camryn's Race for Usher Syndrome | Roanoke, Virginia
September 22: Usher Syndrome Awareness at the Austrian Congress for Rare Diseases | Vienna, Austria

September 30: Motomo Nation "Eat, Play, Give" BBQ Fundraiser for the Coalition | Long Island, NY

Are you planning any other events around Usher Syndrome Awareness Day? Let us know and we'll help spread the word!

Show the world how you are raising awareness for Usher syndrome in honor of our day. Share your efforts on FacebookTwitter and Instagram using the hashtag #USHDAY. 

Thanks to your support and dedication to introducing the world to Usher syndrome, the Coalition is able to continue our work to help and connect all in our community. We look forward to celebrating this day with you.

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