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Usher Syndrome Awareness Day


Saturday, September 19, 2020

Graphic with white and gold text on a navy background. Text reads Global Usher Syndrome Awareness Day, September 19, 2020 #USHDAY USH is a rare disease affecting hearing, vision, balance

We invite you to join the Usher Syndrome Coalition in celebration of our annual global Usher Syndrome Awareness Day!

In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It was even entered into the United States Congressional Record!

This day falls near the autumnal equinox in the northern hemisphere, marking the start of days that contain more darkness than light - a powerful metaphor for the threat of Usher syndrome and why we "Own the Equinox" each year at this time.

In support of the Coalition's community-building efforts, here are a few ways you can get involved:

2019 Highlights

Take a look at some events that took place in 2019 in recognition of Usher Syndrome Awareness Day:

September 14: Camryn's Race for Usher Syndrome | Roanoke. Virginia
September 21: Celebrate with friends and ProTactile ROCKS!! | New York City, NY
September 21: 5 Points Music Foundation to Honor Usher Syndrome Awareness Day with Ana Popovic and New Initiative | Roanoke, Virginia
September 21: USH One See 5K & 10K | Lafayette, Louisiana 
September 21: Usher Syndrome Awareness Rally | National Stadium, Surulere, Lagos State, Nigeria

2019 Proclamations

  1. USH Awareness Day Proclamation | Mississippi 
  2. USH Awareness Day Proclamation | New Jersey
  3. USH Awareness Day Proclamation | Middletown, NJ
  4. USH Awareness Day Proclamation | Pennsylvania 
  5. USH Awareness Day Proclamation | Wayne County, PA
  6. USH Awareness Day Proclamation | Virginia 
  7. USH Awareness Day Proclamation | Minnesota 
  8. USH Awareness Day Proclamation | Washington
  9. USH Awareness Day Proclamation | Ohio

Are you planning any other events around Usher Syndrome Awareness Day? Let us know and we'll help spread the word!

Show the world how you are raising awareness for Usher syndrome in honor of our day. Share your efforts on FacebookTwitter and Instagram using the hashtag #USHDAY. 

Thanks to your support and dedication to introducing the world to Usher syndrome, the Coalition is able to continue our work to help and connect all in our community. We look forward to celebrating this day with you.

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