You are the expert

Join the USH Blue Book

The USH Blue Book (formerly known as the Family Network) connects individuals with Usher syndrome, family members and friends in a global network of support.

If you would like to effortlessly connect with other members of the Blue Book, you can now join the USH Blue Book Online Forum. This private email group was created to provide a way for individuals in our USH Trust and the USH Blue Book to communicate with each other about topics related to Usher syndrome. The group's posts will be saved for future reference, creating a growing body of information from YOU - The Experts! 

Subscribe here or contact Nancy O’Donnell at n.odonnell@usher-syndrome.org.

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