Camryn's Race for Usher Syndrome
My name is Camryn Dermott, I'm an 18 year old senior and I have Usher syndrome. Usher syndrome is the leading genetic cause of deaf-blindness. I am profoundly deaf with cochlear implants and the blindness comes from retinitis pigmentosa. This means I have progressive loss of peripheral vision and night blindness. Although this affects me and takes away from my quality of life, I don't let it prevent me from doing life nor do I let it define me. Not many people know what Usher syndrome is, or that I have it, but there are many, many other people who go through the very same thing and I want to help raise awareness for all of us and hopefully, one day find a cure. In order to do this, I need your help and hope you will join me in this race to help bring awareness as well as money to the Usher Syndrome Coalition, a charity that helps families and supports research to find a cure.
This race is taking place on September 14 in honor of Usher Syndrome Awareness Day (September 21st). This is done because it represents a time of going into darkness, which is what the life of someone with Usher syndrome is like. We are going into a time of more darkness as we progressively lose more vision. This race is taking place before the Clash With the Titans cross country meet that my school and team host.