There are countless ways to get involved with the Usher Syndrome Coalition.
All too often families are told that there is nothing that can be done for Usher syndrome. That is completely untrue. Whether volunteering, fundraising, educating newly diagnosed families, or simply being a sounding board for those afflicted, the quality of life for those with Usher syndrome can be dramatically affected by your participation.
Click the menu items to find out how you can get involved.