https://www.usher-syndrome.org/welcome.html 2024-10-15 https://www.usher-syndrome.org/about-the-coalition/who-we-work-with/ush-partners.html 2021-12-20 https://www.usher-syndrome.org/about-the-coalition/newsroom/grounded-in-science-newsletters.html 2026-01-30 https://www.usher-syndrome.org/about-the-coalition/about.html 2023-04-13 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/welcome.html 2021-12-20 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html 2022-01-28 https://www.usher-syndrome.org/resources/usher-syndrome.html 2024-10-10 https://www.usher-syndrome.org/resources/grounded-in-science/october-2022.html 2023-10-29 https://www.usher-syndrome.org/events/ush2024-recap.html 2024-10-08 https://www.usher-syndrome.org/research/presentations/ush-talks-library.html 2023-02-22 https://www.usher-syndrome.org/about-the-coalition/contact.html 2023-08-05 https://www.usher-syndrome.org/about-the-coalition/newsroom/coalition-in-the-news.html 2026-01-30 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/tips-for-parents.html 2023-11-21 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ambassadors.html 2024-12-28 https://www.usher-syndrome.org/resources/grounded-in-science/november-2022.html 2023-10-29 https://www.usher-syndrome.org/make-an-impact/donate.html 2024-11-20 https://www.usher-syndrome.org/research/progress.html 2023-02-22 https://www.usher-syndrome.org/about-the-coalition/mission-history.html 2023-04-13 https://www.usher-syndrome.org/about-the-coalition/who-we-work-with/community-collaborators.html 2021-12-20 https://www.usher-syndrome.org/resources/grounded-in-science/december-2022.html 2023-10-29 https://www.usher-syndrome.org/resources/connect-with-others.html 2023-04-04 https://www.usher-syndrome.org/about-the-coalition/board-staff.html 2025-03-04 https://www.usher-syndrome.org/resources/grounded-in-science/january-2023.html 2023-10-29 https://www.usher-syndrome.org/resources/grounded-in-science/february-2023.html 2023-10-29 https://www.usher-syndrome.org/make-an-impact/volunteer.html 2025-04-24 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/balance-and-usher-syndrome.html 2023-11-09 https://www.usher-syndrome.org/resources/grounded-in-science/march-2023.html 2023-10-29 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html 2025-06-30 https://www.usher-syndrome.org/events/ush-connections-conferences.html 2024-09-10 https://www.usher-syndrome.org/research/gene-independent.html 2024-10-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/books-for-children.html 2023-11-21 https://www.usher-syndrome.org/resources/grounded-in-science/april-2023.html 2023-10-29 https://www.usher-syndrome.org/make-an-impact/shop-for-ush.html 2025-04-24 https://www.usher-syndrome.org/events/ush-local-socials.html 2024-09-10 https://www.usher-syndrome.org/about-the-coalition/financials.html 2021-12-20 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/resources.html 2023-11-21 https://www.usher-syndrome.org/resources/grounded-in-science/may-2023.html 2023-10-29 https://www.usher-syndrome.org/research/clinical-trials.html 2025-03-11 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html 2023-02-22 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/state-deaf-blind-childrens-projects.html 2023-11-21 https://www.usher-syndrome.org/resources/grounded-in-science/june-2023.html 2023-10-29 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html 2023-02-22 https://www.usher-syndrome.org/about-the-coalition/ush-foresight-awards.html 2023-10-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/mental-health.html 2025-06-30 https://www.usher-syndrome.org/resources/news-and-media/ush-researcher-news.html 2021-12-20 https://www.usher-syndrome.org/resources/grounded-in-science/july-2023.html 2023-11-10 https://www.usher-syndrome.org/make-an-impact/walk4hearing.html 2025-04-24 https://www.usher-syndrome.org/events/ush-awareness-day/globalushday.html 2025-01-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html 2023-02-22 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/tips-for-all-ages.html 2025-06-30 https://www.usher-syndrome.org/resources/grounded-in-science/august-2023.html 2023-11-10 https://www.usher-syndrome.org/events/ush-awareness-day/usher-syndrome-awareness-day-proclamations.html 2024-10-08 https://www.usher-syndrome.org/research/get-genetic-testing.html 2025-01-29 https://www.usher-syndrome.org/resources/grounded-in-science/september-2023.html 2023-11-10 https://www.usher-syndrome.org/research/data-collection.html 2025-02-12 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/tech-tips-and-resources.html 2025-06-30 https://www.usher-syndrome.org/resources/grounded-in-science/october-2023.html 2024-09-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/books.html 2026-02-25 https://www.usher-syndrome.org/resources/grounded-in-science/november-2023.html 2024-09-26 https://www.usher-syndrome.org/resources/about-usher-syndrome-in-asl.html 2024-02-07 https://www.usher-syndrome.org/resources/grounded-in-science/december-2023.html 2025-09-19 https://www.usher-syndrome.org/ush2026.html 2025-11-04 https://www.usher-syndrome.org/resources/frequent-questions.html 2023-02-24 https://www.usher-syndrome.org/resources/grounded-in-science/january-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/february-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html 2025-06-30 https://www.usher-syndrome.org/resources/grounded-in-science/march-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/april-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/may-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/june-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/july-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/august-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/september-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/october-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/november-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/december-2024.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/january-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/february-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/march-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/april-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/may-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/june-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/july-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/july-2025-copy.html 2025-09-19 https://www.usher-syndrome.org/resources/grounded-in-science/september-2025.html 2025-09-19 https://www.usher-syndrome.org/resources/faq/what-is-usher-syndrome.html 2022-10-11 https://www.usher-syndrome.org/resources/faq/types-of-usher-syndrome.html 2022-10-18 https://www.usher-syndrome.org/resources/faq/what-is-usher-syndrome-type-i.html 2022-10-19 https://www.usher-syndrome.org/resources/faq/what-is-usher-syndrome-type-2.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-is-usher-syndrome-type-3.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-is-retinitis-pigmentosa.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-causes-usher-syndrome.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/does-usher-syndrome-always-result-in-total-blindness.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/why-is-early-diagnosis-important.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/how-does-basic-genetics-apply-to-usher-syndrome.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-is-a-genetic-test.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/how-are-genetic-tests-performed.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/why-is-genetic-testing-helpful.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/how-does-a-child-inheriet-a-recessive-mutation.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/how-are-the-results-of-an-usher-gene-interpreted.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/how-much-does-a-genetic-test-cost.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-are-the-research-areas-into-potential-treatments.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-hearing-changes-can-occur.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-is-the-impact-of-geography-and-cultural-values.html 2022-10-26 https://www.usher-syndrome.org/resources/faq/what-is-rare-x.html 2022-11-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/school-age/advocacy.html 2023-11-28 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/just-for-parents/school-age/the-iep-process.html 2025-09-25 https://www.usher-syndrome.org/resources/recursos-en-espanol.html 2023-12-14 https://www.usher-syndrome.org/resources/grounded-in-science/october-2025.html 2025-10-10 https://www.usher-syndrome.org/resources/grounded-in-science/november-2025.html 2025-11-10 https://www.usher-syndrome.org/resources/grounded-in-science/december-2025.html 2026-01-13 https://www.usher-syndrome.org/resources/grounded-in-science/january-2026.html 2026-01-13 https://www.usher-syndrome.org/resources/grounded-in-science/february-2026.html 2026-02-13 https://www.usher-syndrome.org/resources/grounded-in-science/march-2026.html 2026-03-10 https://www.usher-syndrome.org/about-the-coalition/board-staff.html/title/tara-b- 2023-10-31 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2026/02/06/the-usher-syndrome-coalition-joins-allies-in-urging-congress-to-protect-the-department-of-education 2026-02-06 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2026/01/15/aavantgarde-completes-enrollment-in-luce-1-phase-1-2-clinical-trial-of-aavb-081-for-usher-syndrome-type-b-associated-retinitis-pigmentosa 2026-01-15 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/12/10/the-usher-syndrome-coalition-partners-with-eli-lilly-and-company-to-support-research-for-the-ush3a-community 2025-12-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/11/13/foundation-fighting-blindness-provides-public-access-to-data-from-its-rush2a-natural-history-study 2025-11-13 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/11/13/foundation-fighting-blindness-provides-public-access-to-data-from-its-rush2a-natural-history-study 2025-11-13 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/11/04/new-hope-for-vision-nanoscope-therapeutics-mco-010-moves-closer-to-fda-approval 2025-11-04 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/10/16/federal-cuts-threaten-iep-protections-for-kids-with-usher-syndrome 2025-10-16 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/10/10/from-curing-to-healing-rethinking-healthcare-for-people-with-usher-syndrome 2025-10-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/10/01/usher-syndrome-gains-recognition-dedicated-icd-10-cm-codes-to-transform-care-and-research 2025-10-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/09/20/global-usher-syndrome-awareness-day-2025 2025-09-20 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/09/11/letter-of-support-for-state-deafblind-projects 2025-09-11 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/09/01/work-life-balance-in-people-with-usher-syndrome 2025-09-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/08/26/author-correction-alterations-of-the-cib2-calcium-and-integrin-binding-protein-cause-usher-syndrome-type-1j-and-nonsyndromic-deafness-dfnb48 2025-08-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/08/25/jcyte-announces-publication-of-phase-i-iia-safety-study-results-of-retinal-progenitor-cells-in-retinitis-pigmentosa 2025-08-25 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/07/14/nanoscope-initiates-rolling-submission-of-bla-to-fda-for-mco-010-the-first-gene-agnostic-therapy-to-treat-rp 2025-07-14 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/07/01/ush-on-the-hill-and-at-home-learning-to-become-an-ush-champion 2025-07-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/06/10/the-impact-of-hearing-health-on-well-being 2025-06-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/06/10/arvo-2025-usher-syndrome-research-updates 2025-06-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/05/10/on-well-being-living-with-usher-syndrome-practicing-prioritizing-and-protecting-your-mental-health 2025-05-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/24/paediatric-usher-syndrome-navigating-a-challenging-landscape 2025-04-24 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/23/call-to-action-urge-congress-to-reject-proposed-nih-cuts-and-protect-nei 2025-04-23 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/15/repurposing-a-blood-pressure-drug-may-prevent-vision-loss-in-inherited-blinding-diseases 2025-04-15 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/10/on-well-being-internalized-ableism-advocacy-and-mental-health 2025-04-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/08/tracking-tissue-development-to-inspire-regenerative-therapies 2025-04-08 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/07/retinal-cells-discovered-that-could-repair-vision-loss 2025-04-07 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/02/the-korea-advanced-institute-of-science-and-technology-kaist- 2025-04-02 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/02/rare-genes-by-the-usher-syndrome-coalition 2025-04-02 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/04/01/detailed-clinical-ophthalmic-and-genetic-characterization-of-myo7a-associated-usher-syndrome 2025-04-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/31/voluntary-running-partially-prevents-photoreceptor-cell-death-in-retinitis-pigmentosa 2025-03-31 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/28/real-world-examples-of-active-gene-therapy-trials 2025-03-28 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/26/identification-and-characterization-of-human-retinal-stem-cells-capable-of-retinal-regeneration 2025-03-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/21/gene-therapies-how-do-we-get-these-treatments-into-the-right-cells- 2025-03-21 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/21/nih-researchers-develop-eye-drops-that-slow-vision-loss-in-animals 2025-03-21 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/14/gene-therapies-how-do-we-deliver-them-to-the-retina- 2025-03-14 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/10/on-well-being-perseverance-in-the-face-of-uncertainty-living-and-thriving-with-usher-syndrome 2025-03-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/03/07/gene-based-therapies-for-usher-syndrome-and-retinitis-pigmentosa-rp- 2025-03-07 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/02/24/regeneron-gene-therapy-improves-hearing-in-10-children-with-rare-form-of-hearing-loss 2025-02-24 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/02/22/gene-therapy-in-children-with-aipl1-associated-severe-retinal-dystrophy-an-open-label-first-in-human-interventional-study 2025-02-22 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/02/10/we-are-committed-to-advocating-for-you 2025-02-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/02/10/on-well-being-perseverance-resilience-fortitude- 2025-02-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/01/22/nacuity-pharmaceuticals-granted-u-s-fda-fast-track-designation-for-npi-001-n-acetylcysteine-amide-tablets-for-the-treatment-of-retinitis-pigmentosa 2025-01-22 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/01/19/location-and-identity-of-photoreceptors-contributing-to-the-full-field-stimulus-test-fst- 2025-01-19 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2025/01/10/on-well-being-setting-intentions-for-the-new-year 2025-01-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/12/30/defects-in-hair-cells-disrupt-the-development-of-auditory-peripheral-circuitry 2024-12-30 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/12/16/usher-syndrome-coalition-announces-partnership-with-sepul-bio-to-support-clinical-trial-enrollment-for-a-potential-therapy-for-ush2a-mediated-rp 2024-12-16 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/12/13/variants-in-the-agbl5-gene-are-responsible-for-autosomal-recessive-retinitis-pigmentosa-with-hearing-loss 2024-12-13 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/12/12/first-participant-dosed-in-phase-2b-clinical-trial-of-ultevursen-for-ush2a-associated-rp 2024-12-12 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/12/10/on-well-being-practicing-self-care-during-the-holidays-finding-balance-amid-the-festivities 2024-12-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/11/26/the-effects-of-pregnancy-on-disease-progression-of-retinitis-pigmentosa 2024-11-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/11/10/on-well-being-the-positive-impact-of-practicing-gratitude-kindness 2024-11-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/10/23/pcdh15-dual-aav-gene-therapy-for-deafness-and-blindness-in-usher-syndrome-type-1f-models 2024-10-23 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/10/11/safety-clinical-trial-launched-for-usher-syndrome-3-drug 2024-10-12 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/10/10/on-well-being-health-literacy-and-usher-syndrome 2024-10-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/10/09/endpoints-and-design-for-clinical-trials-in-ush2a-related-retinal-degeneration-results-and-recommendations-from-the-rush2a-natural-history-study 2024-10-09 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/10/09/endpoints-and-design-for-clinical-trials-in-ush2a-related-retinal-degeneration-results-and-recommendations-from-the-rush2a-natural-history-study 2024-10-09 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/09/16/aavantgarde-announces-first-participant-dosage-orphan-drug-designation-and-early-safety-data-in-the-phase-1-2-luce-1-clinical-trial-for-ush1b 2024-09-16 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/09/10/on-well-being-equity-in-the-workplace 2024-09-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/09/07/safety-and-efficacy-of-atsn-101-in-patients-with-leber-congenital-amaurosis-caused-by-biallelic-mutations-in-gucy2d-a-phase-1-2-multicentre-open-label-unilateral-dose-escalation-study 2024-09-07 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/09/03/bluerock-therapeutics-announces-fda-clearance-of-ind-application-for-investigational-ipsc-derived-cell-therapy-opct-001-for-the-treatment-of-primary-photoreceptor-diseases 2024-09-03 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/08/10/on-well-being-post-conference-emotions 2024-08-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/08/06/ocugen-announces-fda-approval-of-expanded-access-program-for-patients-with-retinitis-pigmentosa 2024-08-06 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/07/10/on-well-being-deaflead 2024-07-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/07/02/boy-losing-hearing-and-sight-given-hope-by-snuh-researchers-and-samsung-family-donation 2024-07-02 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/06/18/genkore-announces-strategic-collaboration-with-revvity-to-develop-innovative-gene-therapy-treatments 2024-06-18 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/06/17/elasticity-and-thermal-stability-are-key-determinants-of-hearing-rescue-by-mini-protocadherin-15-proteins 2024-06-17 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/06/13/optical-coherence-tomography-biomarkers-in-myo7a-inherited-retinal-dystrophy-longitudinal-study-in-pediatric-patients 2024-06-13 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/06/10/on-well-being-movement 2024-06-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/06/03/multicentric-longitudinal-prospective-study-in-a-european-cohort-of-myo7a-patients-disease-course-and-implications-for-gene-therapy 2024-06-03 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/05/28/adaptive-optics-retinal-imaging-in-patients-with-usher-syndrome 2024-05-28 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/05/28/inherited-retinal-diseases-and-retinal-organoids-as-preclinical-cell-models-for-inherited-retinal-disease-research 2024-05-28 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/05/10/on-well-being-acknowledging-stress-associated-with-self-advocacy-a-parent-and-mental-health-provider-perspective 2024-05-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/04/30/new-improved-cgmp-analogues-to-target-rod-photoreceptor-degeneration 2024-04-30 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/04/30/researchers-reveal-a-new-approach-for-treating-degenerative-diseases-insights-on-the-proteasome-reveal-a-therapy-target-for-misfolded-protein-diseases- 2024-04-30 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/04/30/researchers-reveal-a-new-approach-for-treating-degenerative-diseases 2024-04-30 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/04/10/on-well-being-managing-stress 2024-04-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/04/09/the-prevalence-and-clinical-features-of-myo7a-related-hearing-loss-including-dfna11-dfnb2-and-ush1b 2024-04-09 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/03/26/nanoscope-therapeutics-announces-positive-top-line-results-from-randomized-controlled-trial-of-mco-010-for-retinitis-pigmentosa 2024-03-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/03/21/exploring-the-support-needs-of-australian-parents-of-young-children-with-usher-syndrome-a-qualitative-thematic-analysis 2024-03-21 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/03/10/on-well-being-how-humor-can-help 2024-03-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/03/04/researchers-closing-in-on-genetic-treatments-for-hereditary-lung-disease-vision-loss 2024-03-04 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/03/01/the-ush3a-causative-gene-clrn1-functions-in-m-ller-glia-to-maintain-retinal-photoreceptors 2024-03-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/02/26/navigating-the-usher-syndrome-genetic-landscape-an-evaluation-of-the-associations-between-specific-genes-and-quality-categories-of-cochlear-implant-outcomes 2024-02-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/02/26/crb1-associated-retinal-degeneration-is-dependent-on-bacterial-translocation-from-the-gut 2024-02-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/02/11/medtech-advancements-continue-to-take-place-at-the-international-space-station 2024-02-11 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/02/10/on-well-being-representation-matters 2024-02-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/29/fda-approves-trial-plan-and-fast-tracks-ascidian-therapeutics-acdn-01-in-stargardt-disease 2024-01-29 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/26/using-fmri-new-vision-study-finds-promising-model-for-restoring-cone-function 2024-01-26 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/23/positive-phase-1-2-clinical-trial-data-for-an-investigational-gene-therapy-for-genetic-hearing-loss-to-be-presented-at-the-association-for-research-in-otolaryngology-2024-midwinter-meeting 2024-01-23 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/22/optical-coherence-tomography-in-children-with-inherited-retinal-disease 2024-01-22 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/10/on-well-being-mental-wellness-month 2024-01-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2024/01/10/childhood-deafblindness 2024-01-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/12/21/ocugen-gains-fda-alignment-on-key-aspects-of-ocu400-modifier-gene-therapy-pivotal-phase-3-study-design 2023-12-21 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/12/14/effective-protection-of-photoreceptors-using-an-inflammation-responsive-hydrogel-to-attenuate-outer-retinal-degeneration 2023-12-14 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/12/10/on-well-being-choosing-hope 2023-12-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/11/10/on-well-being-meet-the-team- 2023-11-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/11/09/kiora-pharmaceuticals-reports-q3-2023-results-expanding-clinical-development-of-kio-301-for-inherited-retinal-diseases-based-on-encouraging-results-of-abacus-1-study-in-retinitis-pigmentosa 2023-11-09 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/11/08/dr-william-kimberling 2023-11-08 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/10/17/mass-general-brigham-gene-and-cell-therapy-institute-names-first-winners-of-its-spark-grant-series 2023-10-17 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/10/10/on-well-being-world-mental-health-day 2023-10-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/09/10/on-well-being-internalized-ableism 2023-09-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/08/10/on-well-being-anticipatory-grief 2023-08-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/07/10/on-well-being-empowering-independence 2023-07-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/06/10/on-well-being-fear-of-the-unknown 2023-06-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/06/01/nacuity-achieves-target-enrolment-in-rp-therapy-trial 2023-06-01 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/05/10/on-well-being-community 2023-05-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/04/20/three-dimensional-structure-of-inner-ear-hair-cell-ribbon-synapses-in-a-zebrafish-model-of-usher-syndrome-type-1b 2023-04-20 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/04/10/on-well-being-challenge-accepted 2023-04-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/03/10/on-well-being-grounded-in-our-senses 2023-03-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/02/10/efficacy-pharmacokinetics-and-safety-in-the-mouse-and-primate-retina-of-dual-aav-vectors-for-usher-syndrome-type-1b 2023-02-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/02/10/on-well-being-feeling-your-feelings 2023-02-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2023/01/10/on-well-being-balance 2023-01-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/12/14/proqr-and-usher-syndrome-coalition-ush2a-partnership-update 2022-12-14 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/12/10/on-well-being-patience-and-feeling-out-of-control 2022-12-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/12/08/phone-calls-made-easy-for-deafblind-users 2022-12-08 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/11/10/on-well-being-practicing-gratitude 2022-11-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/10/10/on-well-being-why-grounded-in-science- 2022-10-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/05/08/motherhood-with-usher-syndrome 2022-05-08 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/04/04/let-s-work-together-to-make-podcasts-more-accessible 2022-04-04 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2022/03/10/25-tips-to-make-the-most-of-life-with-low-or-no-vision 2022-03-10 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2021/10/15/gene-therapy-in-inherited-retinal-diseases-an-update-on-current-state-of-the-art 2021-10-15 https://www.usher-syndrome.org/resources/living-with-usher-syndrome/ush-blog.html/article/2017/01/05/gene-therapy-approaches-for-prevention-of-retinal-degeneration-in-usher-syndrome 2017-01-05 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2021/07/27/usher-syndrome-coalition-open-letter-to-the-u-s-olympic-paralympic-committee 2021-07-27 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2021/07/21/statement-of-support-for-paralympian-becca-meyers-from-krista-vasi-executive-director-of-the-usher-syndrome-coalition 2021-07-21 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2019/09/19/meet-our-ush-partner-usher-kids-uk 2019-09-19 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2019/09/18/meet-our-ush-partner-hear-see-hope 2019-09-18 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2019/09/17/meet-our-ush-partner-usher-1f-collaborative 2019-09-17 https://www.usher-syndrome.org/resources/news-and-media/ush-family-news.html/article/2019/09/13/meet-our-ush-partner-ava-s-voice 2019-09-13 https://www.usher-syndrome.org/resources/news-and-media/ush-researcher-news.html/article/2025/06/10/arvo-2025-usher-syndrome-research-updates 2025-06-10 https://www.usher-syndrome.org/resources/news-and-media/ush-researcher-news.html/article/2023/11/08/dr-william-kimberling 2023-11-08 https://www.usher-syndrome.org/resources/news-and-media/ush-researcher-news.html/article/2017/01/23/foundation-fighting-blindness-supporting-clinical-development-of-naca-promising-new-drug-for-many-forms-of-rp 2017-01-23 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2026/02/06/the-usher-syndrome-coalition-joins-allies-in-urging-congress-to-protect-the-department-of-education 2026-02-06 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2025/10/16/federal-cuts-threaten-iep-protections-for-kids-with-usher-syndrome 2025-10-16 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2025/09/11/letter-of-support-for-state-deafblind-projects 2025-09-11 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2025/07/01/ush-on-the-hill-and-at-home-learning-to-become-an-ush-champion 2025-07-01 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2025/04/23/call-to-action-urge-congress-to-reject-proposed-nih-cuts-and-protect-nei 2025-04-23 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2023/08/03/ush-advocacy-update-celebrating-progress-rallying-for-more-take-action-now- 2023-08-03 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2023/02/24/ush-champions-to-return-to-capitol-hill-april-26-27 2023-02-24 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2022/10/19/urge-members-of-congress-to-speed-the-search-for-treatments-for-usher-syndrome 2022-10-19 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2022/08/05/ush-day-on-capitol-hill- 2022-08-05 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2021/09/17/in-collaboration-with-cureusher-of-the-united-kingdom-meet-our-ush-partner 2021-09-17 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/article/2020/09/17/recognizing-usher-syndrome-awareness-day 2020-09-17 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/title/template-for-outside-witness-testimony-house-lhhs-appropriations-subcommittee 2026-03-27 https://www.usher-syndrome.org/make-an-impact/ush-on-capitol-hill.html/title/state-prevalence-estimates 2026-03-27 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2025/11/13/foundation-fighting-blindness-provides-public-access-to-data-from-its-rush2a-natural-history-study 2025-11-13 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2025/11/13/foundation-fighting-blindness-provides-public-access-to-data-from-its-rush2a-natural-history-study 2025-11-13 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/12/16/usher-syndrome-coalition-announces-partnership-with-sepul-bio-to-support-clinical-trial-enrollment-for-a-potential-therapy-for-ush2a-mediated-rp 2024-12-16 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/12/12/first-participant-dosed-in-phase-2b-clinical-trial-of-ultevursen-for-ush2a-associated-rp 2024-12-12 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/11/26/the-effects-of-pregnancy-on-disease-progression-of-retinitis-pigmentosa 2024-11-26 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/10/09/endpoints-and-design-for-clinical-trials-in-ush2a-related-retinal-degeneration-results-and-recommendations-from-the-rush2a-natural-history-study 2024-10-09 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/10/09/endpoints-and-design-for-clinical-trials-in-ush2a-related-retinal-degeneration-results-and-recommendations-from-the-rush2a-natural-history-study 2024-10-09 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/07/02/boy-losing-hearing-and-sight-given-hope-by-snuh-researchers-and-samsung-family-donation 2024-07-02 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/06/18/genkore-announces-strategic-collaboration-with-revvity-to-develop-innovative-gene-therapy-treatments 2024-06-18 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/05/28/adaptive-optics-retinal-imaging-in-patients-with-usher-syndrome 2024-05-28 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2024/02/26/navigating-the-usher-syndrome-genetic-landscape-an-evaluation-of-the-associations-between-specific-genes-and-quality-categories-of-cochlear-implant-outcomes 2024-02-26 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2023/09/12/expression-of-the-human-usherin-c-2299delg-mutation-leads-to-early-onset-auditory-loss-and-stereocilia-disorganization 2023-09-12 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2023/08/07/ush2a-variants-causing-retinitis-pigmentosa-or-usher-syndrome-provoke-differential-retinal-phenotypes-in-disease-specific-organoids 2023-08-07 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2023/05/04/evaluation-of-sleep-quality-and-fatigue-in-patients-with-usher-syndrome-type-2a 2023-05-04 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2023/04/17/university-of-houston-researcher-builds-new-model-to-examine-usher-syndrome 2023-04-17 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2023/03/15/natural-disease-course-in-usher-syndrome-patients-harboring-ush2a-variant-p-cys870-in-exon-13-amenable-to-exon-skipping-therapy 2023-03-15 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2022/12/14/proqr-and-usher-syndrome-coalition-ush2a-partnership-update 2022-12-14 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2022/09/22/retinal-organoids-and-microfluidic-chip-based-approaches-to-explore-the-retinitis-pigmentosa-with-ush2a-mutations 2022-09-22 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2022/01/31/usher-syndrome-coalition-partners-with-proqr 2022-01-31 https://www.usher-syndrome.org/what-is-usher-syndrome/ush-gene-specific-research/ush2a-current-researchtrials.html/article/2021/03/24/clinical-trial-news-positive-results-in-usher-syndrome-and-rp-clinical-study 2021-03-24 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-anne-fulton-diagnostics-epidemiology-and-population-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-kerstin-nagel-wolfrum-therapy-and-clinical-trials 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-heidi-rehm-diagnostics-epidemiology-and-population-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-claes-m-ller-phenotypes-and-natural-history 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-uwe-wolfrum-functional-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-claes-m-ller-psychological-aspects-words-from-the-professionals 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-patricia-zilliox-therapy-and-clinical-trials 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-xue-liu-therapy-and-clinical-trials 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-margaret-kenna-updates-to-the-families 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-margaret-kenna-diagnosis 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-margaret-kenna-phenotypes-and-natural-history 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-jos-m-mill-n-functional-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-edwin-stone-diagnostics-epidemiology-and-population-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-gwena-lle-g-l-oc-updates-to-the-families 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-ilene-miner-diagnostics-epidimiology-and-population-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-susanne-morrow-and-kathleen-labeck-patient-care-and-rehabilitation 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-ren-pellerin-words-for-the-scientists 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-monte-westerfield-functional-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-isabelle-audo-therapy-and-clinical-trials 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/ush2014-presentations-dr-dominic-cosgrove-functional-genetics 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/download-your-digital-copy-of-the-ush2014-program-and-abstracts 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/international-symposium-on-usher-syndrome-2010 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/item/13396950/title/international-symposium-on-usher-syndrome-2010 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/frontiers-conference-2009-dr-margaret-kenna 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/frontiers-conference-2009-dr-heidi-rehm 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/frontiers-conference-2009-dr-william-kimberling 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/frontiers-conference-2009-dr-uwe-wolfrum 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/symposium-presentations.html/title/frontiers-conference-2009-dr-albert-edge 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2016-family-conference-transcript 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2015-family-conference-transcript 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2015-family-conference-dr-nicolas-g-bazan 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2015-family-conference-dr-jennifer-j-lentz 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2015-family-conference-ben-shaberman 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2014-family-conference-transcript 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-full-transcript 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-dr-mark-pennesi 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-karmen-trzupek-cgc 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-dr-kathleen-sie 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-dr-jennifer-phillips 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-mark-dunning 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2013-family-conference-dr-james-phillips 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2012-family-conference-dr-william-kimberling 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2012-family-conference-dr-margaret-kenna 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2012-family-conference-mark-dunning 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2011-family-conference-mark-dunning 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2011-family-conference-dr-heidi-rehm 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2011-family-conference-dr-margaret-kenna 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/family-conference-presentations.html/title/ush2011-family-conference-dr-william-kimberling 2021-12-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/march-2015-dr-david-saperstein-usher-iii-initiative-current-research-and-objectives- 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/january-2015-drs-hannie-kremer-and-erwin-van-wijk-join-us-to-talk-about-their-work-with-usher-syndrome 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/december-2014-mark-dunning-shares-the-latest-on-the-international-usher-syndrome-registry 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-professor-maria-bitner-glindzicz 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-alana-roy 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-bettina-kastrup-pedersen 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2014-dr-lisa-olmos-shares-the-latest-on-the-argus-ii-retinal-prosthesis-system 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/october-2014-rhys-filmer-describes-orcam-a-portable-device-designed-to-assist-the-visually-impaired 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/september-2014-elvira-belt-stichting-mus 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/may-2014-mark-dunning-why-you-shoud-attend-the-international-symposium 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/april-2014-dr-samar-mohanty-optical-control-for-vision-restoration 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/march-2014-moa-walhqvist-persons-with-usher-syndrome-some-aspects-of-health 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/february-2014-dr-william-hauswirth-developing-gene-therapy-for-usher-1b 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/january-2014-dr-jacque-duncan-a-new-tool-to-monitor-cones-during-retinal-degeneration 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/december-2013-dr-david-williams-usher-1b-in-the-retina-basic-science-and-gene-therapy- 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/october-2013-mark-dunning-conference-call-presentation 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/june-2013-dr-eric-pierce-genetic-diagnosis-disease-gene-discovery-and-gene-therapy 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/may-2013-dr-wadih-zein-usher-syndrome-natural-history-and-molecular-genetics 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/april-2013-dr-heidi-rehm-the-genetics-of-usher-syndrome 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/march-2013-dr-eyal-margalit-intraocular-retinal-prosthesis-project-part-1 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/march-2013-dr-eyal-margalit-intraocular-retinal-prosthesis-project-part-2 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/february-2013-ilene-miner-lcsw-psychosocial-impact-of-usher-syndrome 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/january-2013-dr-margaret-kenna 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2012-dr-jennifer-lentz-usher-syndrome-type-1c-mechanisms-animal-models-and-the-hunt-for-a-cure- 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/october-2011-accommodations-in-the-classroom-honore-weiner-and-tracy-evans-luiselli 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/june-2011-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/may-2011-dr-jen-phillips-shares-the-latest-research-presented-at-arvo 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/march-2011-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/feb-2011-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/january-2011-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/november-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/october-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/september-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/june-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/april-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/february-2010-usher-researcher-call-notes- 2022-01-20 https://www.usher-syndrome.org/what-is-usher-syndrome/presentations/monthly-ush-presentations.html/title/january-2010-usher-researcher-call-notes 2022-01-20 https://www.usher-syndrome.org/data-collection.html/title/q-if-i-m-in-the-ush-trust-should-i-join-the-new-usher-syndrome-data-collection-program-dcp-hosted-by-rare-x- 2023-04-05 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988206/title/ush2016-family-conference-transcript 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988211/title/ush2015-family-conference-transcript 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988212/title/ush2015-family-conference-dr-nicolas-g-bazan 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988213/title/ush2015-family-conference-dr-jennifer-j-lentz 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988214/title/ush2015-family-conference-ben-shaberman 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988215/title/ush2014-family-conference-transcript 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988216/title/ush2013-family-conference-full-transcript 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988217/title/ush2013-family-conference-dr-mark-pennesi 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988218/title/ush2013-family-conference-karmen-trzupek-cgc 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988219/title/ush2013-family-conference-dr-kathleen-sie 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988220/title/ush2013-family-conference-dr-jennifer-phillips 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988221/title/ush2013-family-conference-mark-dunning 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988222/title/ush2013-family-conference-dr-james-phillips 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988223/title/ush2012-family-conference-dr-william-kimberling 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988224/title/ush2012-family-conference-dr-margaret-kenna 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988225/title/ush2012-family-conference-mark-dunning 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988226/title/ush2011-family-conference-mark-dunning 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988227/title/ush2011-family-conference-dr-heidi-rehm 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988228/title/ush2011-family-conference-dr-margaret-kenna 2023-02-22 https://www.usher-syndrome.org/research/presentations/family-conference-presentations.html/item/13988229/title/ush2011-family-conference-dr-william-kimberling 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988231/title/ush2014-presentations-dr-anne-fulton-diagnostics-epidemiology-and-population-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988232/title/ush2014-presentations-dr-kerstin-nagel-wolfrum-therapy-and-clinical-trials 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988233/title/ush2014-presentations-dr-heidi-rehm-diagnostics-epidemiology-and-population-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988234/title/ush2014-presentations-dr-claes-m-ller-phenotypes-and-natural-history 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988235/title/ush2014-presentations-dr-uwe-wolfrum-functional-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988236/title/ush2014-presentations-dr-claes-m-ller-psychological-aspects-words-from-the-professionals 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988237/title/ush2014-presentations-dr-patricia-zilliox-therapy-and-clinical-trials 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988238/title/ush2014-presentations-dr-xue-liu-therapy-and-clinical-trials 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988239/title/ush2014-presentations-dr-margaret-kenna-updates-to-the-families 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988240/title/ush2014-presentations-dr-margaret-kenna-diagnosis 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988241/title/ush2014-presentations-dr-margaret-kenna-phenotypes-and-natural-history 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988242/title/ush2014-presentations-dr-jos-m-mill-n-functional-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988243/title/ush2014-presentations-dr-edwin-stone-diagnostics-epidemiology-and-population-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988244/title/ush2014-presentations-dr-gwena-lle-g-l-oc-updates-to-the-families 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988245/title/ush2014-presentations-ilene-miner-diagnostics-epidimiology-and-population-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988246/title/ush2014-presentations-susanne-morrow-and-kathleen-labeck-patient-care-and-rehabilitation 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988247/title/ush2014-presentations-ren-pellerin-words-for-the-scientists 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988248/title/ush2014-presentations-dr-monte-westerfield-functional-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988249/title/ush2014-presentations-dr-isabelle-audo-therapy-and-clinical-trials 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988250/title/ush2014-presentations-dr-dominic-cosgrove-functional-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988251/title/download-your-digital-copy-of-the-ush2014-program-and-abstracts 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988252/title/international-symposium-on-usher-syndrome-2010 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988253/title/international-symposium-on-usher-syndrome-2010 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988254/title/frontiers-conference-2009-dr-margaret-kenna 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988255/title/frontiers-conference-2009-dr-heidi-rehm 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988256/title/frontiers-conference-2009-dr-william-kimberling 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988257/title/frontiers-conference-2009-dr-uwe-wolfrum 2023-02-22 https://www.usher-syndrome.org/research/presentations/symposium-presentations.html/item/13988258/title/frontiers-conference-2009-dr-albert-edge 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988259/title/march-2015-dr-david-saperstein-usher-iii-initiative-current-research-and-objectives- 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988260/title/january-2015-drs-hannie-kremer-and-erwin-van-wijk-join-us-to-talk-about-their-work-with-usher-syndrome 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988261/title/december-2014-mark-dunning-shares-the-latest-on-the-international-usher-syndrome-registry 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988262/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-professor-maria-bitner-glindzicz 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988263/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-alana-roy 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988264/title/november-2014-deafblind-international-pre-conference-on-usher-syndrome-bettina-kastrup-pedersen 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988265/title/november-2014-dr-lisa-olmos-shares-the-latest-on-the-argus-ii-retinal-prosthesis-system 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988266/title/october-2014-rhys-filmer-describes-orcam-a-portable-device-designed-to-assist-the-visually-impaired 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988267/title/september-2014-elvira-belt-stichting-mus 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988268/title/may-2014-mark-dunning-why-you-shoud-attend-the-international-symposium 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988269/title/april-2014-dr-samar-mohanty-optical-control-for-vision-restoration 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988270/title/march-2014-moa-walhqvist-persons-with-usher-syndrome-some-aspects-of-health 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988271/title/february-2014-dr-william-hauswirth-developing-gene-therapy-for-usher-1b 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988272/title/january-2014-dr-jacque-duncan-a-new-tool-to-monitor-cones-during-retinal-degeneration 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988273/title/december-2013-dr-david-williams-usher-1b-in-the-retina-basic-science-and-gene-therapy- 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988274/title/october-2013-mark-dunning-conference-call-presentation 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988275/title/june-2013-dr-eric-pierce-genetic-diagnosis-disease-gene-discovery-and-gene-therapy 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988276/title/may-2013-dr-wadih-zein-usher-syndrome-natural-history-and-molecular-genetics 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988277/title/april-2013-dr-heidi-rehm-the-genetics-of-usher-syndrome 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988278/title/march-2013-dr-eyal-margalit-intraocular-retinal-prosthesis-project-part-1 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988279/title/march-2013-dr-eyal-margalit-intraocular-retinal-prosthesis-project-part-2 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988280/title/february-2013-ilene-miner-lcsw-psychosocial-impact-of-usher-syndrome 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988281/title/january-2013-dr-margaret-kenna 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988282/title/november-2012-dr-jennifer-lentz-usher-syndrome-type-1c-mechanisms-animal-models-and-the-hunt-for-a-cure- 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988284/title/october-2011-accommodations-in-the-classroom-honore-weiner-and-tracy-evans-luiselli 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988285/title/june-2011-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988286/title/may-2011-dr-jen-phillips-shares-the-latest-research-presented-at-arvo 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988287/title/march-2011-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988288/title/feb-2011-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988289/title/january-2011-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988290/title/november-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988291/title/october-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988292/title/september-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988293/title/june-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988294/title/april-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988295/title/february-2010-usher-researcher-call-notes- 2023-02-22 https://www.usher-syndrome.org/research/presentations/monthly-ush-presentations.html/item/13988296/title/january-2010-usher-researcher-call-notes 2023-02-22 https://www.usher-syndrome.org/about-the-coalition/scientific-advisory-cmte.html/title/aziz-el-emraoui-phd 2025-09-19 https://www.usher-syndrome.org/about-the-coalition/scientific-advisory-cmte.html/title/rachel-huckfeldt-md-phd 2025-09-19 https://www.usher-syndrome.org/about-the-coalition/scientific-advisory-cmte.html/title/margaret-a-kenna-md-mph 2025-09-19 https://www.usher-syndrome.org/about-the-coalition/scientific-advisory-cmte.html/title/jennifer-j-lentz-phd 2025-09-19 https://www.usher-syndrome.org/about-the-coalition/scientific-advisory-cmte.html/title/monte-westerfield-phd 2025-09-19