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Learn about living with Usher syndrome from people with Usher

Living with Usher Syndrome

This is life with Usher as those with Usher see it.

  • Learn about Ava and her transition to a new school.

  • Bella, 9, is fearless, energetic, popular child who speaks flawless English, loves art and dancing, is an accomplished equestrian, and is soon to join the school chorus.

  • Bill writes "I had a crazy idea at age 45. I decided to climb Mount Kilimanjaro with no previous climbing experience. I never imagined the power of an idea would land me in the local, regional, national and international media. I never imagined that"...

  • Kevin, 41, writes "At age 36, having 5% vision and 10% hearing left, I got myself back on skates, something that I have great passion for. Four years later, after 120 races in short and long track, I’ve won 5 gold, 6 silver, and 11 bronze medals against able bodied skaters"...

  • Rachel, 21, writes "In 1989, I became one of the first 200 children in US to receive a cochlear implant as part of the FDA clinical trials"...

  • Ramona doesn't just survive. She thrives!

  • Rene lives with Usher Syndrome and is the coordinator of the Northern Vermont Resource Center, part of the Vermont Center for the Deaf and Hard of Hearing...

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