USH Researcher News
Press Release: (Columbia, MD) - The Foundation Fighting Blindness Clinical Research Institute (FFB-CRI) has announced an investment of up to $7.5 million to advance a promising, emerging drug treatment for retinitis pigmentosa (RP) into and through a Phase II clinical trial. Read More...
The Usher Syndrome Coalition is posting this on behalf of the University of Alabama at Birmingham’s (UAB) Genetic Counseling Training Program:
UAB student Caitlin Wright is currently recruiting parents for a study examining the psychosocial impact on parents who have children diagnosed with Usher syndrome. With this study, they hope to compare parent experiences for those whose children received a diagnosis at a young age to those who received a diagnosis at a later age. Participation involves a 30 minute interview in English (by phone or in person).
Dr. Sahel plans to try to restore sight using several breakthrough treatments he helped pioneer at the Vision Institute, a research center he founded in Paris.
22 young investigators - including Astra Dinculescu, Ph.D., Usher syndrome researcher - attended AEVR’s annual AMD Congressional briefing entitled 'Advances in the Diagnosis and Treatment of AMD and Retinal Diseases.'
Geneticist Heidi Rehm, founding member of the USC, is "at the forefront of a genetic revolution in medicine..."
Read the full article about her career and work in Middlebury Magazine.
Usher syndrome laboratory named in honor of William Kimberling, Ph.D.
Christine Petit and Karen Steel won the Brain Prize of 1 million euros in part for their research on Usher syndrome.
Alstrom Syndrome UK would like you to be aware that Alstrom syndrome can be misdiagnosed as Usher syndrome. Learn more about Alstrom Syndrome here...